Core principles for involving people with dementia in research: Innovative practice

The Scottish Dementia Working Group Research Sub-group is part of the Scottish Dementia Working Group, an internationally renowned campaigning group of people with dementia. We co-created our core principles for involving people with dementia in research between September and December 2013. The prin...

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Bibliographic Details
Published in:Dementia (London, England) England), 2014-09, Vol.13 (5), p.680-685
Main Author: Anon., Anon
Format: Article
Language:English
Subjects:
Biomedical Research
Dementia - psychology
Guidelines as Topic
Humans
Knowledge
Research Subjects
Scotland
Senility
Training
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Summary:The Scottish Dementia Working Group Research Sub-group is part of the Scottish Dementia Working Group, an internationally renowned campaigning group of people with dementia. We co-created our core principles for involving people with dementia in research between September and December 2013. The principles address six areas: (i) how people with dementia are valued and involved in research, (ii) lived experience as valid knowledge, (iii) physical and emotional safety, (iv) accessibility of all aspects of research, (v) training for researchers and (vi) the impact of our experiences of time on research processes. Through our core principles, we challenge researchers across all disciplines to re-consider how we and other people with dementia are involved in research as well as how knowledge in dementia research is created.
ISSN:1471-3012
1741-2684
DOI:10.1177/1471301214533255