First report of factors associated with satisfaction in patients with neurofibromatosis

Patient satisfaction is an integral part of quality health care. We assessed whether health literacy and psychosocial factors are associated with patient satisfaction among adults with neurofibromatosis. Eighty adults (mean age = 44 years; 55% female, 87% white) with NF (50% NF1, 41% NF2, and 9% sch...

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Published in:American journal of medical genetics. Part A 2017-03, Vol.173 (3), p.671-677
Main Authors: Riklin, Eric, Talaei‐Khoei, Mojtaba, Merker, Vanessa L., Sheridan, Monica R., Jordan, Justin T., Plotkin, Scott R., Vranceanu, Ana‐Maria
Format: Article
Language:English
Subjects:
Adult
Communication
Cross-Sectional Studies
Demography
Disease Management
Factor Analysis, Statistical
Female
Genetic disorders
Health education
Health Literacy
Humans
Information systems
Male
medical visits
Middle Aged
Neurofibromatoses - diagnosis
Neurofibromatoses - epidemiology
Neurofibromatoses - therapy
Neurofibromatosis
Neurofibromin 2
Neurological disorders
Outcome Assessment, Health Care
Pain
Patient Satisfaction
Self Report
Social interactions
Surveys and Questionnaires
Tumors
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Summary:Patient satisfaction is an integral part of quality health care. We assessed whether health literacy and psychosocial factors are associated with patient satisfaction among adults with neurofibromatosis. Eighty adults (mean age = 44 years; 55% female, 87% white) with NF (50% NF1, 41% NF2, and 9% schwannomatosis) completed an adapted Functional, Communicative, and Critical Health Literacy Questionnaire (FCCHL), the Health Literacy Assessment, a series of Patient Reported Outcome Measures Information System (PROMIS) psychosocial tests, and demographics before the medical visit. After, participants completed two measures of satisfaction: the Medical Interview Satisfaction Scale (MISS) to assess satisfaction with the medical visit, and an adapted version of the Consumer Assessment of Healthcare Providers and Systems Health Literacy Item Set (CAHPS‐HL) to assess satisfaction with communication with the provider. Although higher FCCHL health literacy (r = 0.319, P = 0.002), male gender (t = 2.045, P = 0.044) and better psychosocial functioning (r = −0.257 to 0.409, P 
ISSN:1552-4825
1552-4833
DOI:10.1002/ajmg.a.38079