Self‐Advocacy as a Means to Positive Identities for People with Intellectual Disability: ‘We Just Help Them, Be Them Really’

• Published in: Journal of applied research in intellectual disabilities 2017-01, Vol.30 (1), p.109-120
• Main Authors: Anderson, Sian, Bigby, Christine
• Format: Article
• Language: English
• Subjects: Adult; Advocacy; Collegiality; Foreign Countries; Friendship; Grounded Theory; Humans; Identification (Psychology); Inclusion; Intellectual disabilities; Intellectual Disability; Intellectual Disability - psychology; Ownership; participation; Patient Advocacy - psychology; Power Structure; Self Advocacy; Self-Help Groups; Semi Structured Interviews; Skill Development; Social Bias; Social Identification; social identity; social inclusion; Tasmania; United Kingdom; Victoria
• ISSN: 1360-2322; 1468-3148
• DOI: 10.1111/jar.12223

Background Stigma attached to having an intellectual disability has negative implications for the social identities and inclusion of people with intellectual disability. Aim The study explored the effects of membership of independent self‐advocacy groups on the social identity of people with intellectual disability. Method Using a constructivist grounded theory methodology, semi‐structured interviews were conducted with 25 members of six self‐advocacy groups which varied in size, resources, location and policy context: two based in the Australian states of Victoria and Tasmania and four in the UK. Results Collegiality, ownership and control by members characterized groups. They gave members opportunities for paid or voluntary work, skill development and friendship which contributed to their confidence and engagement with life. Possibilities for new more positive identities such as being an expert, a business‐like person, a self‐advocate and an independent person were opened up. Self‐advocacy is an important means of furthering social inclusion of people with intellectual disability.