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Assessment of Quality of Life of Family Members of Inpatients with End-Stage Disease
Background: An important aim of palliative care is to ensure the highest possible quality of life (QoL) for the family members of patients. Aim: We aimed to determine the QoL of family members of hospitalized patients with end-stage disease, as well as differences in QoL based on socio-demographic c...
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| Published in: | Journal of palliative care 2015-12, Vol.31 (4), p.250-257 |
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| Main Authors: | , , |
| Format: | Article |
| Language: | English |
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| cites | cdi_FETCH-LOGICAL-c437t-8da99b166d8d5bcf7eb619352d5e8e4efa2c8d7585bc3a0bfd66956d50d3c333 |
| container_end_page | 257 |
| container_issue | 4 |
| container_start_page | 250 |
| container_title | Journal of palliative care |
| container_volume | 31 |
| creator | Buzgova, R Kozakova, R Sikorova, L |
| description | Background:
An important aim of palliative care is to ensure the highest possible quality of life (QoL) for the family members of patients.
Aim:
We aimed to determine the QoL of family members of hospitalized patients with end-stage disease, as well as differences in QoL based on socio-demographic characteristics and the patient's functional status, psychological distress, and QoL.
Methods:
Study participants were 292 family members of terminally ill patients at University Hospital, Ostrava, Czech Republic. To evaluate family members' QoL, we used the Quality of Life in Life-Threatening Illness — Family Carer Version (QOLLTI-F). We used the Hospital Anxiety and Depression Scale (HADS) and the Karnofsky Performance Status (KPS) Scale to assess patients' functional status and psychological distress.
Results:
A statistically significant difference was found in QoL evaluation based on family members' socio-demographic characteristics in education, employment, and age. A significantly lower QoL score was observed for patients' life partners in six domains. A correlation was found between patients' poorer functional status and family members' lower QoL. We found lower global QoL in family members of patients with depression.
Conclusion:
Family support is a cornerstone of palliative care. Palliative care professionals should focus on at-risk family members — the life partners of patients, the unemployed, younger people, and those whose ill loved one has a poor functional status. |
| doi_str_mv | 10.1177/082585971503100407 |
| format | article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_1892093180</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sage_id>10.1177_082585971503100407</sage_id><sourcerecordid>1755539238</sourcerecordid><originalsourceid>FETCH-LOGICAL-c437t-8da99b166d8d5bcf7eb619352d5e8e4efa2c8d7585bc3a0bfd66956d50d3c333</originalsourceid><addsrcrecordid>eNqN0UtL7TAQB_Agip6rfgEXUnDjpjpJmtdSfNwrHBHx7EvaTLXSx7HTIufb23JU5IroakL4zYTJn7EDDiecG3MKViirnOEKJAdIwGywmZDaxUo4uclmE4gnscP-ED0BgAEB22xHaKs0F3rGFmdESFRj00dtEd0Nvir71XSclwVO9crXZbWKbrDOsKPp5rpZ-r4cOyh6KfvH6LIJ8X3vHzC6KAk94R7bKnxFuP9Wd9ni6nJx_i-e3_69Pj-bx3kiTR_b4J3LuNbBBpXlhcFMcyeVCAotJlh4kdtgxh2zXHrIiqC1UzooCDKXUu6y4_XYZdc-D0h9WpeUY1X5BtuBUm6dACe5hZ-p0YmUzib2F1QpJZ2QEz36jz61Q9eMK08K5JgM16MSa5V3LVGHRbrsytp3q5RDOgWZfg1ybDp8Gz1kNYaPlvfkRnC6BjR-_Kd3vx_5Cvs8o0U</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>1750371516</pqid></control><display><type>article</type><title>Assessment of Quality of Life of Family Members of Inpatients with End-Stage Disease</title><source>SAGE:Jisc Collections:SAGE Journals Read and Publish 2023-2024:2025 extension (reading list)</source><creator>Buzgova, R ; Kozakova, R ; Sikorova, L</creator><creatorcontrib>Buzgova, R ; Kozakova, R ; Sikorova, L</creatorcontrib><description>Background:
An important aim of palliative care is to ensure the highest possible quality of life (QoL) for the family members of patients.
Aim:
We aimed to determine the QoL of family members of hospitalized patients with end-stage disease, as well as differences in QoL based on socio-demographic characteristics and the patient's functional status, psychological distress, and QoL.
Methods:
Study participants were 292 family members of terminally ill patients at University Hospital, Ostrava, Czech Republic. To evaluate family members' QoL, we used the Quality of Life in Life-Threatening Illness — Family Carer Version (QOLLTI-F). We used the Hospital Anxiety and Depression Scale (HADS) and the Karnofsky Performance Status (KPS) Scale to assess patients' functional status and psychological distress.
Results:
A statistically significant difference was found in QoL evaluation based on family members' socio-demographic characteristics in education, employment, and age. A significantly lower QoL score was observed for patients' life partners in six domains. A correlation was found between patients' poorer functional status and family members' lower QoL. We found lower global QoL in family members of patients with depression.
Conclusion:
Family support is a cornerstone of palliative care. Palliative care professionals should focus on at-risk family members — the life partners of patients, the unemployed, younger people, and those whose ill loved one has a poor functional status.</description><identifier>ISSN: 0825-8597</identifier><identifier>EISSN: 2369-5293</identifier><identifier>DOI: 10.1177/082585971503100407</identifier><identifier>PMID: 26856126</identifier><language>eng</language><publisher>Los Angeles, CA: SAGE Publications</publisher><subject>Adult ; Aged ; Aged, 80 and over ; Caregivers ; Cronbach's alpha ; Czech Republic ; Family - psychology ; Female ; Humans ; Illnesses ; Inpatients ; Karnofsky Performance Status ; Male ; Middle Aged ; Palliative care ; Palliative Care - psychology ; Patients ; Psychiatric Status Rating Scales ; Quality of life ; Quality of Life - psychology ; Questionnaires ; Sociodemographics ; Socioeconomic Factors ; Terminally Ill</subject><ispartof>Journal of palliative care, 2015-12, Vol.31 (4), p.250-257</ispartof><rights>2015 SAGE Publications</rights><rights>Copyright Laboratoire de Recherche en Ethique et Vieillissement. Centre de Recherche Fourth Quarter 2015</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c437t-8da99b166d8d5bcf7eb619352d5e8e4efa2c8d7585bc3a0bfd66956d50d3c333</citedby><cites>FETCH-LOGICAL-c437t-8da99b166d8d5bcf7eb619352d5e8e4efa2c8d7585bc3a0bfd66956d50d3c333</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,776,780,27901,27902</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/26856126$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Buzgova, R</creatorcontrib><creatorcontrib>Kozakova, R</creatorcontrib><creatorcontrib>Sikorova, L</creatorcontrib><title>Assessment of Quality of Life of Family Members of Inpatients with End-Stage Disease</title><title>Journal of palliative care</title><addtitle>J Palliat Care</addtitle><description>Background:
An important aim of palliative care is to ensure the highest possible quality of life (QoL) for the family members of patients.
Aim:
We aimed to determine the QoL of family members of hospitalized patients with end-stage disease, as well as differences in QoL based on socio-demographic characteristics and the patient's functional status, psychological distress, and QoL.
Methods:
Study participants were 292 family members of terminally ill patients at University Hospital, Ostrava, Czech Republic. To evaluate family members' QoL, we used the Quality of Life in Life-Threatening Illness — Family Carer Version (QOLLTI-F). We used the Hospital Anxiety and Depression Scale (HADS) and the Karnofsky Performance Status (KPS) Scale to assess patients' functional status and psychological distress.
Results:
A statistically significant difference was found in QoL evaluation based on family members' socio-demographic characteristics in education, employment, and age. A significantly lower QoL score was observed for patients' life partners in six domains. A correlation was found between patients' poorer functional status and family members' lower QoL. We found lower global QoL in family members of patients with depression.
Conclusion:
Family support is a cornerstone of palliative care. Palliative care professionals should focus on at-risk family members — the life partners of patients, the unemployed, younger people, and those whose ill loved one has a poor functional status.</description><subject>Adult</subject><subject>Aged</subject><subject>Aged, 80 and over</subject><subject>Caregivers</subject><subject>Cronbach's alpha</subject><subject>Czech Republic</subject><subject>Family - psychology</subject><subject>Female</subject><subject>Humans</subject><subject>Illnesses</subject><subject>Inpatients</subject><subject>Karnofsky Performance Status</subject><subject>Male</subject><subject>Middle Aged</subject><subject>Palliative care</subject><subject>Palliative Care - psychology</subject><subject>Patients</subject><subject>Psychiatric Status Rating Scales</subject><subject>Quality of life</subject><subject>Quality of Life - psychology</subject><subject>Questionnaires</subject><subject>Sociodemographics</subject><subject>Socioeconomic Factors</subject><subject>Terminally Ill</subject><issn>0825-8597</issn><issn>2369-5293</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2015</creationdate><recordtype>article</recordtype><recordid>eNqN0UtL7TAQB_Agip6rfgEXUnDjpjpJmtdSfNwrHBHx7EvaTLXSx7HTIufb23JU5IroakL4zYTJn7EDDiecG3MKViirnOEKJAdIwGywmZDaxUo4uclmE4gnscP-ED0BgAEB22xHaKs0F3rGFmdESFRj00dtEd0Nvir71XSclwVO9crXZbWKbrDOsKPp5rpZ-r4cOyh6KfvH6LIJ8X3vHzC6KAk94R7bKnxFuP9Wd9ni6nJx_i-e3_69Pj-bx3kiTR_b4J3LuNbBBpXlhcFMcyeVCAotJlh4kdtgxh2zXHrIiqC1UzooCDKXUu6y4_XYZdc-D0h9WpeUY1X5BtuBUm6dACe5hZ-p0YmUzib2F1QpJZ2QEz36jz61Q9eMK08K5JgM16MSa5V3LVGHRbrsytp3q5RDOgWZfg1ybDp8Gz1kNYaPlvfkRnC6BjR-_Kd3vx_5Cvs8o0U</recordid><startdate>20151201</startdate><enddate>20151201</enddate><creator>Buzgova, R</creator><creator>Kozakova, R</creator><creator>Sikorova, L</creator><general>SAGE Publications</general><general>SAGE PUBLICATIONS, INC</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7RV</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>88G</scope><scope>8AO</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>8FQ</scope><scope>8FV</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AN0</scope><scope>ASE</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FPQ</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>K6X</scope><scope>K9.</scope><scope>KB0</scope><scope>M0S</scope><scope>M1P</scope><scope>M2M</scope><scope>M3G</scope><scope>NAPCQ</scope><scope>PHGZM</scope><scope>PHGZT</scope><scope>PJZUB</scope><scope>PKEHL</scope><scope>PPXIY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PSYQQ</scope><scope>Q9U</scope><scope>S0X</scope><scope>7X8</scope></search><sort><creationdate>20151201</creationdate><title>Assessment of Quality of Life of Family Members of Inpatients with End-Stage Disease</title><author>Buzgova, R ; Kozakova, R ; Sikorova, L</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c437t-8da99b166d8d5bcf7eb619352d5e8e4efa2c8d7585bc3a0bfd66956d50d3c333</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2015</creationdate><topic>Adult</topic><topic>Aged</topic><topic>Aged, 80 and over</topic><topic>Caregivers</topic><topic>Cronbach's alpha</topic><topic>Czech Republic</topic><topic>Family - psychology</topic><topic>Female</topic><topic>Humans</topic><topic>Illnesses</topic><topic>Inpatients</topic><topic>Karnofsky Performance Status</topic><topic>Male</topic><topic>Middle Aged</topic><topic>Palliative care</topic><topic>Palliative Care - psychology</topic><topic>Patients</topic><topic>Psychiatric Status Rating Scales</topic><topic>Quality of life</topic><topic>Quality of Life - psychology</topic><topic>Questionnaires</topic><topic>Sociodemographics</topic><topic>Socioeconomic Factors</topic><topic>Terminally Ill</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Buzgova, R</creatorcontrib><creatorcontrib>Kozakova, R</creatorcontrib><creatorcontrib>Sikorova, L</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Proquest Nursing & Allied Health Source</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Psychology Database (Alumni)</collection><collection>ProQuest Pharma Collection</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>Canadian Business & Current Affairs Database</collection><collection>Canadian Business & Current Affairs Database (Alumni Edition)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>British Nursing Database</collection><collection>British Nursing Index</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>British Nursing Index</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>ProQuest Psychology</collection><collection>CBCA Reference & Current Events</collection><collection>Nursing & Allied Health Premium</collection><collection>ProQuest Central (New)</collection><collection>ProQuest One Academic (New)</collection><collection>ProQuest Health & Medical Research Collection</collection><collection>ProQuest One Academic Middle East (New)</collection><collection>ProQuest One Health & Nursing</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest One Psychology</collection><collection>ProQuest Central Basic</collection><collection>SIRS Editorial</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of palliative care</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Buzgova, R</au><au>Kozakova, R</au><au>Sikorova, L</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Assessment of Quality of Life of Family Members of Inpatients with End-Stage Disease</atitle><jtitle>Journal of palliative care</jtitle><addtitle>J Palliat Care</addtitle><date>2015-12-01</date><risdate>2015</risdate><volume>31</volume><issue>4</issue><spage>250</spage><epage>257</epage><pages>250-257</pages><issn>0825-8597</issn><eissn>2369-5293</eissn><abstract>Background:
An important aim of palliative care is to ensure the highest possible quality of life (QoL) for the family members of patients.
Aim:
We aimed to determine the QoL of family members of hospitalized patients with end-stage disease, as well as differences in QoL based on socio-demographic characteristics and the patient's functional status, psychological distress, and QoL.
Methods:
Study participants were 292 family members of terminally ill patients at University Hospital, Ostrava, Czech Republic. To evaluate family members' QoL, we used the Quality of Life in Life-Threatening Illness — Family Carer Version (QOLLTI-F). We used the Hospital Anxiety and Depression Scale (HADS) and the Karnofsky Performance Status (KPS) Scale to assess patients' functional status and psychological distress.
Results:
A statistically significant difference was found in QoL evaluation based on family members' socio-demographic characteristics in education, employment, and age. A significantly lower QoL score was observed for patients' life partners in six domains. A correlation was found between patients' poorer functional status and family members' lower QoL. We found lower global QoL in family members of patients with depression.
Conclusion:
Family support is a cornerstone of palliative care. Palliative care professionals should focus on at-risk family members — the life partners of patients, the unemployed, younger people, and those whose ill loved one has a poor functional status.</abstract><cop>Los Angeles, CA</cop><pub>SAGE Publications</pub><pmid>26856126</pmid><doi>10.1177/082585971503100407</doi><tpages>8</tpages></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0825-8597 |
| ispartof | Journal of palliative care, 2015-12, Vol.31 (4), p.250-257 |
| issn | 0825-8597 2369-5293 |
| language | eng |
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| source | SAGE:Jisc Collections:SAGE Journals Read and Publish 2023-2024:2025 extension (reading list) |
| subjects | Adult Aged Aged, 80 and over Caregivers Cronbach's alpha Czech Republic Family - psychology Female Humans Illnesses Inpatients Karnofsky Performance Status Male Middle Aged Palliative care Palliative Care - psychology Patients Psychiatric Status Rating Scales Quality of life Quality of Life - psychology Questionnaires Sociodemographics Socioeconomic Factors Terminally Ill |
| title | Assessment of Quality of Life of Family Members of Inpatients with End-Stage Disease |
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