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Core elements to understand and improve coping with Parkinson's disease in patients and family carers: A focus group study
Aims The aim of this study were: (1) To explore the meaning that coping with Parkinson's disease has for patients and family carers; (2) To suggest the components of an intervention focused on enhancing their coping with the disease. Background Adapting to Parkinson's disease involves goin...
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| Published in: | Journal of advanced nursing 2017-11, Vol.73 (11), p.2609-2621 |
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| Main Authors: | , , , , , |
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| cites | cdi_FETCH-LOGICAL-c3885-1dfc7e5da8f70be51a69297e840dc957bfa511b01d782cf27ac3f6cb64abc3f3 |
| container_end_page | 2621 |
| container_issue | 11 |
| container_start_page | 2609 |
| container_title | Journal of advanced nursing |
| container_volume | 73 |
| creator | Navarta‐Sánchez, M. Victoria Caparrós, Neus Riverol Fernández, Mario Díaz De Cerio Ayesa, Sara Ursúa Sesma, M. Eugenia Portillo, Mari Carmen |
| description | Aims
The aim of this study were: (1) To explore the meaning that coping with Parkinson's disease has for patients and family carers; (2) To suggest the components of an intervention focused on enhancing their coping with the disease.
Background
Adapting to Parkinson's disease involves going through many difficult changes; however, it may improve quality of life in patients and family carers. One of the key aspects for facilitating the psychosocial adjustment to Parkinson's disease is the strengthening of coping skills.
Design
A sequential explanatory mixed methods study was carried out. Findings from the qualitative phase are presented.
Methods
Data were collected in May 2014 through three focus groups: one of people with Parkinson's disease (n = 9), one of family carers (n = 7) and one of healthcare professionals (n = 5). All focus groups were digitally recorded and transcribed verbatim and content analysis was independently carried out by two researchers.
Findings
The participants coincided in highlighting that coping with Parkinson's disease helped the patient and the family carer in their search for balance; and it implied a transformation in their lives. To aid the process of coping with Parkinson's disease, a multifaceted intervention is proposed.
Conclusion
Coping with Parkinson's disease is a complex process for both patients and family carers and it should therefore be considered a standard service in healthcare policies aimed at this group. The proposed intervention constitutes a nursing tool which has great potential to improve the quality of life in Parkinson's disease and in other long‐term conditions. |
| doi_str_mv | 10.1111/jan.13335 |
| format | article |
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The aim of this study were: (1) To explore the meaning that coping with Parkinson's disease has for patients and family carers; (2) To suggest the components of an intervention focused on enhancing their coping with the disease.
Background
Adapting to Parkinson's disease involves going through many difficult changes; however, it may improve quality of life in patients and family carers. One of the key aspects for facilitating the psychosocial adjustment to Parkinson's disease is the strengthening of coping skills.
Design
A sequential explanatory mixed methods study was carried out. Findings from the qualitative phase are presented.
Methods
Data were collected in May 2014 through three focus groups: one of people with Parkinson's disease (n = 9), one of family carers (n = 7) and one of healthcare professionals (n = 5). All focus groups were digitally recorded and transcribed verbatim and content analysis was independently carried out by two researchers.
Findings
The participants coincided in highlighting that coping with Parkinson's disease helped the patient and the family carer in their search for balance; and it implied a transformation in their lives. To aid the process of coping with Parkinson's disease, a multifaceted intervention is proposed.
Conclusion
Coping with Parkinson's disease is a complex process for both patients and family carers and it should therefore be considered a standard service in healthcare policies aimed at this group. The proposed intervention constitutes a nursing tool which has great potential to improve the quality of life in Parkinson's disease and in other long‐term conditions.</description><identifier>ISSN: 0309-2402</identifier><identifier>EISSN: 1365-2648</identifier><identifier>DOI: 10.1111/jan.13335</identifier><identifier>PMID: 28494098</identifier><language>eng</language><publisher>England: Wiley Subscription Services, Inc</publisher><subject>Adaptation, Psychological ; Adjustment ; Caregivers ; Caregivers - psychology ; Chronic illnesses ; Content analysis ; Coping ; Coping strategies ; Families & family life ; family carers ; Focus Groups ; Health care ; Humans ; Intervention ; long‐term condition ; Meaning ; Medical personnel ; non‐pharmacological intervention ; Nursing ; Parkinson Disease - nursing ; Parkinson Disease - psychology ; Parkinson's disease ; psychosocial adjustment ; Psychosocial factors ; Qualitative research ; Quality of life ; Transformation</subject><ispartof>Journal of advanced nursing, 2017-11, Vol.73 (11), p.2609-2621</ispartof><rights>2017 John Wiley & Sons Ltd</rights><rights>2017 John Wiley & Sons Ltd.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3885-1dfc7e5da8f70be51a69297e840dc957bfa511b01d782cf27ac3f6cb64abc3f3</citedby><cites>FETCH-LOGICAL-c3885-1dfc7e5da8f70be51a69297e840dc957bfa511b01d782cf27ac3f6cb64abc3f3</cites><orcidid>0000-0003-1583-6612</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,780,784,27924,27925,30999</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/28494098$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Navarta‐Sánchez, M. Victoria</creatorcontrib><creatorcontrib>Caparrós, Neus</creatorcontrib><creatorcontrib>Riverol Fernández, Mario</creatorcontrib><creatorcontrib>Díaz De Cerio Ayesa, Sara</creatorcontrib><creatorcontrib>Ursúa Sesma, M. Eugenia</creatorcontrib><creatorcontrib>Portillo, Mari Carmen</creatorcontrib><title>Core elements to understand and improve coping with Parkinson's disease in patients and family carers: A focus group study</title><title>Journal of advanced nursing</title><addtitle>J Adv Nurs</addtitle><description>Aims
The aim of this study were: (1) To explore the meaning that coping with Parkinson's disease has for patients and family carers; (2) To suggest the components of an intervention focused on enhancing their coping with the disease.
Background
Adapting to Parkinson's disease involves going through many difficult changes; however, it may improve quality of life in patients and family carers. One of the key aspects for facilitating the psychosocial adjustment to Parkinson's disease is the strengthening of coping skills.
Design
A sequential explanatory mixed methods study was carried out. Findings from the qualitative phase are presented.
Methods
Data were collected in May 2014 through three focus groups: one of people with Parkinson's disease (n = 9), one of family carers (n = 7) and one of healthcare professionals (n = 5). All focus groups were digitally recorded and transcribed verbatim and content analysis was independently carried out by two researchers.
Findings
The participants coincided in highlighting that coping with Parkinson's disease helped the patient and the family carer in their search for balance; and it implied a transformation in their lives. To aid the process of coping with Parkinson's disease, a multifaceted intervention is proposed.
Conclusion
Coping with Parkinson's disease is a complex process for both patients and family carers and it should therefore be considered a standard service in healthcare policies aimed at this group. The proposed intervention constitutes a nursing tool which has great potential to improve the quality of life in Parkinson's disease and in other long‐term conditions.</description><subject>Adaptation, Psychological</subject><subject>Adjustment</subject><subject>Caregivers</subject><subject>Caregivers - psychology</subject><subject>Chronic illnesses</subject><subject>Content analysis</subject><subject>Coping</subject><subject>Coping strategies</subject><subject>Families & family life</subject><subject>family carers</subject><subject>Focus Groups</subject><subject>Health care</subject><subject>Humans</subject><subject>Intervention</subject><subject>long‐term condition</subject><subject>Meaning</subject><subject>Medical personnel</subject><subject>non‐pharmacological intervention</subject><subject>Nursing</subject><subject>Parkinson Disease - nursing</subject><subject>Parkinson Disease - psychology</subject><subject>Parkinson's disease</subject><subject>psychosocial adjustment</subject><subject>Psychosocial factors</subject><subject>Qualitative research</subject><subject>Quality of life</subject><subject>Transformation</subject><issn>0309-2402</issn><issn>1365-2648</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2017</creationdate><recordtype>article</recordtype><sourceid>7QJ</sourceid><recordid>eNp1kT1vFDEQhi1ERC6Bgj-ALFEAxSb-2A873elEgCgKFOktrz0OPnbtxd4lOn49vlygQMpI1rh4_GjGL0KvKTmjpc63OpxRznnzDK0ob5uKtbV4jlaEE1mxmrBjdJLzlhDKGWMv0DETtayJFCv0exMTYBhghDBnPEe8BAspzzpYvD9-nFL8BdjEyYc7fO_n7_ibTj98yDG8y9j6DDoD9gFPevYPlv07p0c_7LDRqdgu8Bq7aJaM71JcJpznxe5eoiOnhwyvHvspur38eLv5XF1__fRls76uDBeiqah1poPGauE60kNDdSuZ7EDUxBrZdL3TDaU9obYTzDjWacNda_q21n258VP0_qAte_xcIM9q9NnAMOgAccmKCikplbwhBX37H7qNSwplOEVl-THZcsIK9eFAmRRzTuDUlPyo005RovZ5qJKHesijsG8ejUs_gv1H_g2gAOcH4N4PsHvapK7WNwflHwP_lbk</recordid><startdate>201711</startdate><enddate>201711</enddate><creator>Navarta‐Sánchez, M. Victoria</creator><creator>Caparrós, Neus</creator><creator>Riverol Fernández, Mario</creator><creator>Díaz De Cerio Ayesa, Sara</creator><creator>Ursúa Sesma, M. Eugenia</creator><creator>Portillo, Mari Carmen</creator><general>Wiley Subscription Services, Inc</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>NAPCQ</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0003-1583-6612</orcidid></search><sort><creationdate>201711</creationdate><title>Core elements to understand and improve coping with Parkinson's disease in patients and family carers: A focus group study</title><author>Navarta‐Sánchez, M. Victoria ; Caparrós, Neus ; Riverol Fernández, Mario ; Díaz De Cerio Ayesa, Sara ; Ursúa Sesma, M. Eugenia ; Portillo, Mari Carmen</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c3885-1dfc7e5da8f70be51a69297e840dc957bfa511b01d782cf27ac3f6cb64abc3f3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2017</creationdate><topic>Adaptation, Psychological</topic><topic>Adjustment</topic><topic>Caregivers</topic><topic>Caregivers - psychology</topic><topic>Chronic illnesses</topic><topic>Content analysis</topic><topic>Coping</topic><topic>Coping strategies</topic><topic>Families & family life</topic><topic>family carers</topic><topic>Focus Groups</topic><topic>Health care</topic><topic>Humans</topic><topic>Intervention</topic><topic>long‐term condition</topic><topic>Meaning</topic><topic>Medical personnel</topic><topic>non‐pharmacological intervention</topic><topic>Nursing</topic><topic>Parkinson Disease - nursing</topic><topic>Parkinson Disease - psychology</topic><topic>Parkinson's disease</topic><topic>psychosocial adjustment</topic><topic>Psychosocial factors</topic><topic>Qualitative research</topic><topic>Quality of life</topic><topic>Transformation</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Navarta‐Sánchez, M. Victoria</creatorcontrib><creatorcontrib>Caparrós, Neus</creatorcontrib><creatorcontrib>Riverol Fernández, Mario</creatorcontrib><creatorcontrib>Díaz De Cerio Ayesa, Sara</creatorcontrib><creatorcontrib>Ursúa Sesma, M. Eugenia</creatorcontrib><creatorcontrib>Portillo, Mari Carmen</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of advanced nursing</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Navarta‐Sánchez, M. Victoria</au><au>Caparrós, Neus</au><au>Riverol Fernández, Mario</au><au>Díaz De Cerio Ayesa, Sara</au><au>Ursúa Sesma, M. Eugenia</au><au>Portillo, Mari Carmen</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Core elements to understand and improve coping with Parkinson's disease in patients and family carers: A focus group study</atitle><jtitle>Journal of advanced nursing</jtitle><addtitle>J Adv Nurs</addtitle><date>2017-11</date><risdate>2017</risdate><volume>73</volume><issue>11</issue><spage>2609</spage><epage>2621</epage><pages>2609-2621</pages><issn>0309-2402</issn><eissn>1365-2648</eissn><abstract>Aims
The aim of this study were: (1) To explore the meaning that coping with Parkinson's disease has for patients and family carers; (2) To suggest the components of an intervention focused on enhancing their coping with the disease.
Background
Adapting to Parkinson's disease involves going through many difficult changes; however, it may improve quality of life in patients and family carers. One of the key aspects for facilitating the psychosocial adjustment to Parkinson's disease is the strengthening of coping skills.
Design
A sequential explanatory mixed methods study was carried out. Findings from the qualitative phase are presented.
Methods
Data were collected in May 2014 through three focus groups: one of people with Parkinson's disease (n = 9), one of family carers (n = 7) and one of healthcare professionals (n = 5). All focus groups were digitally recorded and transcribed verbatim and content analysis was independently carried out by two researchers.
Findings
The participants coincided in highlighting that coping with Parkinson's disease helped the patient and the family carer in their search for balance; and it implied a transformation in their lives. To aid the process of coping with Parkinson's disease, a multifaceted intervention is proposed.
Conclusion
Coping with Parkinson's disease is a complex process for both patients and family carers and it should therefore be considered a standard service in healthcare policies aimed at this group. The proposed intervention constitutes a nursing tool which has great potential to improve the quality of life in Parkinson's disease and in other long‐term conditions.</abstract><cop>England</cop><pub>Wiley Subscription Services, Inc</pub><pmid>28494098</pmid><doi>10.1111/jan.13335</doi><tpages>13</tpages><orcidid>https://orcid.org/0000-0003-1583-6612</orcidid><oa>free_for_read</oa></addata></record> |
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| ispartof | Journal of advanced nursing, 2017-11, Vol.73 (11), p.2609-2621 |
| issn | 0309-2402 1365-2648 |
| language | eng |
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| source | Applied Social Sciences Index & Abstracts (ASSIA); Wiley |
| subjects | Adaptation, Psychological Adjustment Caregivers Caregivers - psychology Chronic illnesses Content analysis Coping Coping strategies Families & family life family carers Focus Groups Health care Humans Intervention long‐term condition Meaning Medical personnel non‐pharmacological intervention Nursing Parkinson Disease - nursing Parkinson Disease - psychology Parkinson's disease psychosocial adjustment Psychosocial factors Qualitative research Quality of life Transformation |
| title | Core elements to understand and improve coping with Parkinson's disease in patients and family carers: A focus group study |
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