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A family-centered intervention for the transition to living with multiple myeloma as a chronic illness: A pilot study

Patients with multiple myeloma and their family caregivers must master self-management tasks related not only to the disease and treatment, but also associated with transitioning to living with chronic illness. The aim of this study was to assess the feasibility, acceptability, safety, and fidelity...

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Published in:Applied nursing research 2017-06, Vol.35, p.86-89
Main Authors: Mazanec, Susan R., Miano, Sarah, Baer, Linda, Campagnaro, Erica L., Sattar, Abdus, Daly, Barbara J.
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container_title Applied nursing research
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creator Mazanec, Susan R.
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description Patients with multiple myeloma and their family caregivers must master self-management tasks related not only to the disease and treatment, but also associated with transitioning to living with chronic illness. The aim of this study was to assess the feasibility, acceptability, safety, and fidelity of an intervention that had a psychoeducational approach and included a low-impact, home-based walking activity. A secondary aim was to obtain preliminary data of the effect of the intervention, as compared to an attention control group, on anxiety, activation for self-management, fatigue, depression and health-related quality of life (HRQOL). A sample of 15 adult patients with multiple myeloma and their family caregivers were randomized into either an intervention or attention-control group. The intervention was delivered to the dyad in one session and booster calls were made at 1 and 3 weeks. The control group received printed educational resources and telephone contacts. Measures were done at baseline, and 6 and 12 weeks. Descriptive statistics were used. The intervention was safe, feasible, and acceptable to patients and caregivers. Fidelity was high for the initial session, but low with booster calls. Improvement in scores for activation, fatigue, depression, anxiety, physical HRQOL, and emotional distress was seen in at least 40% of patients in the intervention group. Fewer caregivers in the intervention group showed improvement on the outcome variables. Leveraging a behavioral strategy such as walking, along with supportive and educational resources, is promising for promoting well-being within the patient/caregiver dyad. Further refinement of the intervention is needed to strengthen its efficacy for the caregiver and exploratory work is essential to understand the interpersonal supportive processes associated with the walking activity.
doi_str_mv 10.1016/j.apnr.2017.03.003
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subjects Activation
Adult
Caregivers - psychology
Chronic Disease - psychology
Chronic Disease - therapy
Family - psychology
Family caregivers
Female
Home Care Services
Humans
Male
Middle Aged
Multiple myeloma
Multiple Myeloma - therapy
Nursing
Pilot intervention
Pilot Projects
Transitional Care
title A family-centered intervention for the transition to living with multiple myeloma as a chronic illness: A pilot study
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