Delays to Care in Pediatric Lupus Patients: Data From the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry

Objective Prompt treatment for lupus is important to prevent morbidity. A potential barrier to early treatment of pediatric lupus is delayed presentation to a pediatric rheumatologist. To better understand factors contributing to delayed presentation among pediatric lupus patients, we examined diffe...

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Published in:Arthritis care & research (2010) 2018-03, Vol.70 (3), p.420-427
Main Authors: Rubinstein, Tamar B., Mowrey, Wenzhu B., Ilowite, Norman T., Wahezi, Dawn M., Abramson, L., Anderson, E., Battle, N., Becker, M., Benham, H., Birmingham, J., Brown, A., Brunner, H., Carlton, D., Caruso, B., Chang, J., Charpentier, P., Clark, K., Dean, J., Dedeoglu, F., Ferguson, P., Fox, M., Francis, K., Gervasini, M., Goldsmith, D., Gorton, G., Gottlieb, B., Graham, T., Griffin, T., Grosbein, H., Guppy, S., Haftel, H., Helfrich, D., Higgins, G., Hillard, A., Hollister, J.R., Hsu, J., Hudgins, A., Hung, C., Huttenlocher, A., Imlay, A., Imundo, L., Inman, C.J., Jaqith, J., Jerath, R., Kahn, P., Kapedani, A., Kingsbury, D., Klein, K., Klein‐Gitelman, M., Kunkel, A., Lapidus, S., Layburn, S., Lehman, T., Lindsley, C., Macgregor‐Hannah, M., Malloy, M., McCurdy, D., Mims, K., Morus, D., Muscal, E., Natter, M., O'Neil, K., Orlando, M., Palmquist, J., Ponder, L., Prahalad, S., Puplava, D., Quinn, S., Quintero, A., Rabinovich, C., Reed, A., Ringold, S., Riordan, M., Roberson, S., Robinson, A., Rossette, J., Rothman, D., Russo, D., Ruth, N., Sestak, A., Shaham, B., Simmons, M., Singer, N., Stapp, H., Syed, R., Thomas, E., Torok, K., Trejo, D., Tress, J., Vehe, R., Scheven, E., Walters, L., Weiss, J., Weiss, P., Welnick, N., White, A., Wootton, J., Yalcindag, A., Zapp, C., Zemel, L.
Format: Article
Language:English
Subjects:
Arthritis
Children
Data processing
Exanthema
Health care access
Lupus
Morbidity
Pediatrics
Rheumatology
Systemic lupus erythematosus
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Summary:Objective Prompt treatment for lupus is important to prevent morbidity. A potential barrier to early treatment of pediatric lupus is delayed presentation to a pediatric rheumatologist. To better understand factors contributing to delayed presentation among pediatric lupus patients, we examined differences in demographic and clinical characteristics of lupus patients within the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Legacy Registry with regard to time between symptom onset and presentation to a pediatric rheumatologist. Methods We analyzed data from 598 CARRA Legacy Registry participants for differences between those who presented early (within
ISSN:2151-464X
2151-4658
DOI:10.1002/acr.23285