Quality Items Required for Running a Paediatric Inflammatory Bowel Disease Centre: An ECCO Paper

The importance of a holistic approach with a comprehensive multidisciplinary team, including nutritional and psychosocial support, is becoming well recognised as a key contributor to optimal care in paediatric inflammatory bowel disease [IBD]. The Paediatric committee of ECCO [P-ECCO] aimed to deter...

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Bibliographic Details
Published in:Journal of Crohn's and colitis 2017-08, Vol.11 (8), p.981-987
Main Authors: Turner, Dan, Carle, Adam, Steiner, Steven J, Margolis, Peter A, Colletti, Richard B, Russell, Richard K, Levine, Arie, Kolho, Kaija-Leena, Ruemmele, Frank M
Format: Article
Language:English
Subjects:
Ambulatory Care Facilities - organization & administration
Ambulatory Care Facilities - standards
Child
Delphi Technique
Europe
Humans
Inflammatory Bowel Diseases - therapy
Patient Care Team - organization & administration
Quality of Health Care - standards
Registries
Workforce
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Summary:The importance of a holistic approach with a comprehensive multidisciplinary team, including nutritional and psychosocial support, is becoming well recognised as a key contributor to optimal care in paediatric inflammatory bowel disease [IBD]. The Paediatric committee of ECCO [P-ECCO] aimed to determine important components that would contribute to quality of care in a paediatric IBD centre [henceforth 'quality items']. First, a list of items has been generated by a Delphi group of 111 international paediatric IBD experts. Through an iterative process, the group graded and ranked the items according to their perceived relative contribution to quality care. We then surveyed 101 paediatric IBD centres affiliated with the Porto and Interest groups of ESPGHAN in Europe and with the ImproveCareNow registry in North America, exploring the availability of the retained items in their centres. A total of 68 items were generated and reduced to a list of 60 ranked order items, grouped in six domains: Facility, Personnel, Management, Supportive Services, Patient Support and Accessibility, and Academia and Communications. Of the retained items, 52 [88%] were present in most of the 101 high-performing paediatric IBD centres, and there was a trend for increased availability with increased patient volume at the centres. In this P-ECCO study, we attempted to tabulate, for the first time in paediatrics, 60 quality items that paediatric IBD referral centres may wish to include.
ISSN:1873-9946
1876-4479
DOI:10.1093/ecco-jcc/jjx036