The quality of life of children with severe developmental disabilities

Background Research examining the quality of life (QoL) of children with severe developmental disabilities (SDD) is limited. The present study examines parent perceptions of child QoL in children with SDD compared with typically developing (TD) children and then examines predictors of QoL for the SD...

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Bibliographic Details
Published in:Journal of intellectual disability research 2018-03, Vol.62 (3), p.237-244
Main Authors: Ncube, B. L., Perry, A., Weiss, J. A.
Format: Article
Language:English
Subjects:
Achievement
Adolescents
Age Differences
autism
Behavior Problems
Children
Children & youth
Children with disabilities
Comparative Analysis
Coping
Developmental Disabilities
developmental disability
Educational Quality
Foreign Countries
Friendship
Happiness
intellectual disability
Online Surveys
Parent Attitudes
Parents
Psychological distress
Psychological Patterns
Quality of Life
Severe Disabilities
Stress Variables
well‐being
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Summary:Background Research examining the quality of life (QoL) of children with severe developmental disabilities (SDD) is limited. The present study examines parent perceptions of child QoL in children with SDD compared with typically developing (TD) children and then examines predictors of QoL for the SDD group. Method Parents of 246 children with SDD (aged 4 to 19 years) and 210 TD children (aged 4 to 18 years) responded to an online survey. QoL was measured using a composite variable composed of the child's happiness, achievement of potential and friendship quality. Results Children with DD had lower QoL ratings than TD children. In children with DD, higher QoL was related to younger age, higher adaptive skills, lower maladaptive behaviour, lower parent psychological distress and higher satisfaction with the child's education. Conclusions Interventions to promote positive outcomes for children with SDD should target both characteristics of the individual and the environment.
ISSN:0964-2633
1365-2788
DOI:10.1111/jir.12460