Recovering missing mesothelioma deaths in death certificates using hospital records

Background In Brazil, underreporting of mesothelioma and cancer of the pleura (MCP) is suspected to be high. Records from death certificates (SIM) and hospital registers (SIH‐SUS) can be combined to recover missing data but only anonymous databases are available. This study shows how common data can...

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Bibliographic Details
Published in:American journal of industrial medicine 2018-07, Vol.61 (7), p.547-555
Main Authors: Santana, Vilma S., Algranti, Eduardo, Campos, Felipe, Cavalcante, Franciana, Salvi, Leonardo, Santos, Simone A., Inamine, Rosemeire N., Souza, William, Consonni, Dario
Format: Article
Language:English
Subjects:
Cancer
Certificates
Data bases
Death
death certificates
hospital‐based records
Information retrieval
Information systems
linkage
Mesothelioma
Missing data
Mortality
Pleura
pleural cancer
underreporting
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Summary:Background In Brazil, underreporting of mesothelioma and cancer of the pleura (MCP) is suspected to be high. Records from death certificates (SIM) and hospital registers (SIH‐SUS) can be combined to recover missing data but only anonymous databases are available. This study shows how common data can be used for linkage and as an assessment of accuracy. Methods Mesothelioma (all sites, ICD‐10 codes C45.0‐C45.9) and cancer of the pleura (C38.4) were retrieved from both information systems and combined using a linkage algorithm. Accuracy was examined with non‐anonymous databases, limited to the state of São Paulo. Results We found 775 cases in death certificates and 283 in hospital registers. The linkage matched 57 cases, all accurately paired. Three cases, 0.4% in SIM and 1.3% in SIH‐SUS, could not be matched because of data inconsistencies. Conclusions A computer linkage can recover MCP cases from hospital records not found in death certificates in Brazil.
ISSN:0271-3586
1097-0274
DOI:10.1002/ajim.22846