The quality of dying and death measurement instruments: A systematic psychometric review

Aims To identify instruments that could assess the quality of dying and death and their psychometric properties. To assess the methodological quality of studies on measurement properties. Background A high quality of death is regarded as a goal at the end of life and, therefore, an assessment of the...

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Bibliographic Details
Published in:Journal of advanced nursing 2018-08, Vol.74 (8), p.1803-1818
Main Authors: Gutiérrez Sánchez, Daniel, Pérez Cruzado, David, Cuesta‐Vargas, Antonio I.
Format: Article
Language:English
Subjects:
Caregivers
Checklists
Clinical research
Death & dying
end of life
End of life decisions
good death
instruments
Measurement
nursing
outcome measure
Palliative care
psychometric properties
psychometric systematic review
Quality of care
quality of dying and death
Quantitative psychology
Questionnaires
Systematic review
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Summary:Aims To identify instruments that could assess the quality of dying and death and their psychometric properties. To assess the methodological quality of studies on measurement properties. Background A high quality of death is regarded as a goal at the end of life and, therefore, an assessment of the end of life experience is essential. Many instruments have been developed to evaluate the quality of dying and death. The selection of the most appropriate measure to be used in clinical and research settings is crucial. Design Psychometric systematic review. Data Sources We systematically searched ProQuest Medline, SciELO and ProQuest PsycINFO from 1970 ‐ May 2016. Review Methods Identification and evaluation of instruments that assessed quality of dying and death. Papers were evaluated by two independent reviewers according to the COSMIN checklist with a 4‐point scale. Results A total of 19 studies were included in this review. Seven instruments were found that were specifically designed for assessing quality of dying and death. A retrospective carer proxy report to evaluate this construct was used in most of the papers. The methodological quality of the studies was fair for most of the psychometric characteristics analyzed. Conclusion Many instruments have been developed to assess the quality of dying and death. The Quality of Dying and Death Questionnaire is the best available measure of the quality of dying and death. It is the only questionnaire identified in this review where all psychometric properties according to the COSMIN checklist have been evaluated.
ISSN:0309-2402
1365-2648
DOI:10.1111/jan.13687