Parent Perceptions of Community Autism Spectrum Disorder Stigma: Measure Validation and Associations in a Multi-site Sample

In this study we developed a brief, English/Spanish bilingual parent-reported scale of perceived community autism spectrum disorder (ASD) stigma and tested it in a multi-site sample of Latino and non-Latino white parents of children with ASD. Confirmatory factor analysis of the scale supported a sin...

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Bibliographic Details
Published in:Journal of autism and developmental disorders 2018-09, Vol.48 (9), p.3199-3209
Main Authors: Zuckerman, Katharine E., Lindly, Olivia J., Reyes, Nuri M., Chavez, Alison E., Cobian, Maritza, Macias, Kristy, Reynolds, Ann M., Smith, Kathryn A.
Format: Article
Language:English
Subjects:
Analysis
Autism
Autism Spectrum Disorder - diagnosis
Autism Spectrum Disorder - ethnology
Autism Spectrum Disorder - psychology
Autistic children
Behavioral Science and Psychology
Care and treatment
Child
Child and School Psychology
Child, Preschool
Children
Confirmatory factor analysis
Correlation
Developmental disabilities
Diagnosis
Ethnicity
European Continental Ancestry Group - psychology
Factor Analysis
Family Characteristics - ethnology
Family Structure
Female
Health aspects
Health Surveys - methods
Health Surveys - standards
Hispanic Americans
Hispanic Americans - psychology
Humans
Insurance
Male
Medical care quality
Multilingualism
Needs
Neurosciences
Original Paper
Parent Attitudes
Parents - psychology
Pediatrics
Perception - physiology
Pervasive Developmental Disorders
Psychology
Public Health
Scores
Severity
Severity (of Disability)
Social Bias
Social Stigma
Stigma
Test Validity
Therapy
Validity
Whites
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Description
Summary:In this study we developed a brief, English/Spanish bilingual parent-reported scale of perceived community autism spectrum disorder (ASD) stigma and tested it in a multi-site sample of Latino and non-Latino white parents of children with ASD. Confirmatory factor analysis of the scale supported a single factor solution with 8 items showing good internal consistency. Regression modeling suggested that stigma score was associated with unmet ASD care needs but not therapy hours or therapy types. Child public insurance, parent nativity, number of children with ASD in the household, parent-reported ASD severity, and family structure, were associated with higher stigma score. The scale and the scale’s associations with service use may be useful to those attempting to measure or reduce ASD stigma.
ISSN:0162-3257
1573-3432
DOI:10.1007/s10803-018-3586-x