Communicative Accessibility in Aphasia: An Investigation of the Interactional Context of Long-Term Care Facilities

• Published in: American journal of speech-language pathology 2018-11, Vol.27 (4), p.1474-1490
• Main Authors: Azios, Jamie H, Damico, Jack S, Roussel, Nancye
• Format: Article
• Language: English
• Subjects: Aphasia; Aphasic persons; Caregivers; Clinical decision making; Communication; Communication (Thought Transfer); Corporate culture; Decision making; Dementia; Environmental Influences; Ethnography; Geriatrics; Health care policy; Hospitals; Interpersonal communication; Interpersonal Relationship; Interviews; Language Impairments; Listening Comprehension; Long term care; Long term care facilities; Long term health care; Medical personnel-patient relations; Miscommunication; Nursing homes; Organizational Culture; Participant Observation; Physical Environment; Qualitative research; Reading comprehension; Rehabilitation; Research design; Research Methodology; Semi Structured Interviews; Social aspects; Speech Language Pathology; Speech therapists; Speech-language pathologists; Stroke; Systematic review
• ISSN: 1058-0360; 1558-9110
• DOI: 10.1044/2018_AJSLP-17-0099

The purpose of this study was to examine the ability of persons with aphasia to access interaction and be included in social encounters in long-term care facilities (LTCFs). Four persons with aphasia were the focus of this investigation. A qualitative research approach using ethnographic methods was used to conduct participant observation, semistructured interviews, and artifact analysis. Expanded field notes from observations, transcribed interviews, and artifacts were then coded to identify patterns in the data. The interactional context of LTCFs negatively influenced the ability of persons with aphasia to communicate with others and develop meaningful relationships. Three major themes emerged from the data detailing the contextual elements leading to communication accessibility and inclusion: (a) lack of support, (b) social hierarchy, and (c) focus on performance. Findings highlighted several barriers in LTCFs that worked to discourage persons with aphasia from living social and expressive lives. Specific obstacles included a misunderstanding of aphasia and its influence on communicative exchanges and performance-oriented environment that overlooked psychosocial needs. Speech-language pathologists have an important role for advocacy in LTCFs. Clinical implications for assessment and treatment in institutions are discussed.