Stress and quality of life in parents of children with phenylketonuria

Background Phenylketonuria is a hereditary disease caused by the lack or deficiency of phenylalanine hydroxylase enzyme activity. Parents of children with phenylketonuria undergo significant stress during their childcare years. They are also responsible for controlling their children’s dietary treat...

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Bibliographic Details
Published in:Journal of child and adolescent psychiatric nursing 2018-10, Vol.31 (2-3), p.48-52
Main Authors: Irannejad, Fatemeh, Dehghan, Mahlagha, Mehdipour Rabori, Roghayeh
Format: Article
Language:English
Subjects:
Adult
Caregivers
Child
Child & adolescent psychiatry
Child psychology
Child, Preschool
Correlation
Cross-Sectional Studies
Diet
Female
Genetic disorders
Humans
Infant
Iran
Male
Metabolic disorders
Middle Aged
Parents
Parents & parenting
Parents - psychology
phenylketonuria
Phenylketonurias - nursing
Quality of life
Quality of Life - psychology
Stress
Stress, Psychological - psychology
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Summary:Background Phenylketonuria is a hereditary disease caused by the lack or deficiency of phenylalanine hydroxylase enzyme activity. Parents of children with phenylketonuria undergo significant stress during their childcare years. They are also responsible for controlling their children’s dietary treatment and this may affect their quality of life. The purpose of this study was to investigate the relationship between stress and quality of life in parents of children with phenylketonuria. Methods The present cross‐sectional study is a correlation–analytical research performed on parents of children with phenylketonuria in Kerman province in Iran in 2017. In total, 124 parents were chosen by consensus method. Parents completed the perceived stress scale and quality of life (SF36). SPSS software version 18 (https://www.presidion.com/software/ibm-spss-trial-downloads/) was used to analyze the data. Results Total scores of stress and quality of life were 28.81 ± 8.74 and 45.97 ± 21.22. There was a significant negative correlation between quality of life and perceived stress (p 
ISSN:1073-6077
1744-6171
DOI:10.1111/jcap.12207