Impact of Caregiver Burden on Quality of Life for Parents of Adult Children With Autism Spectrum Disorder

This study sought to examine the impact of time, developmental, emotional, and financial burdens on the quality of life (QOL) for parents (aged 50+) of an adult child with autism spectrum disorder (ASD). Participants ( N = 320) completed a web-based survey and could indicate interest in participatin...

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Bibliographic Details
Published in:American journal on intellectual and developmental disabilities 2019-03, Vol.124 (2), p.145-156
Main Authors: Marsack-Topolewski, Christina N, Church, Heather L
Format: Article
Language:English
Subjects:
Adaptation, Psychological
Adult
Adult children
Adult Children - psychology
Adults
Aged
Aging
Aging (Individuals)
Autism
Autism Spectrum Disorder - psychology
Autism Spectrum Disorder - therapy
Autism Spectrum Disorders
Autistic children
Caregivers
Caregivers - psychology
Caring
Children & youth
Coping
Correlation
Cost of Illness
Developmental disabilities
Families & family life
Family (Sociological Unit)
Female
Humans
Intellectual disabilities
Interpersonal Relationship
Male
Meta Analysis
Middle Aged
Multiple Regression Analysis
Older parents
Parent Responsibility
Parents & parenting
Parents - psychology
Quality of life
Quality of Life - psychology
Surveys and Questionnaires
Young Children
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Summary:This study sought to examine the impact of time, developmental, emotional, and financial burdens on the quality of life (QOL) for parents (aged 50+) of an adult child with autism spectrum disorder (ASD). Participants ( N = 320) completed a web-based survey and could indicate interest in participating in one-on-one follow up interviews. Multiple linear regression analysis indicated that two variables, developmental burden and impact of caregiving on finances, were statistically significant predictors of parents' QOL. Developmental burden was the strongest predictor of parental QOL, demonstrating an inverse relationship. Qualitatively, reported findings indicated that many parents were experiencing all four burdens. Findings highlighted the need to provide services and supports to alleviate burden among aging parents of adult children with ASD.
ISSN:1944-7515
1944-7558
DOI:10.1352/1944-7558-124.2.145