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Recruiting vulnerable populations to participate in HIV prevention research: findings from the Together 5000 cohort study
The aim of the article was to examine factors associated with completing enrollment milestones in the Together 5000 cohort of at-risk men (n = 8661), transmen (n = 53), and transwomen (n = 63) who have sex with men. Between 2017 and 2018, participants completed an online enrollment survey and were o...
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Published in: | Annals of epidemiology 2019-07, Vol.35, p.4-11 |
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container_title | Annals of epidemiology |
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creator | Grov, Christian Westmoreland, Drew A. Carneiro, Pedro B. Stief, Matthew MacCrate, Caitlin Mirzayi, Chloe Pantalone, David W. Patel, Viraj V. Nash, Denis |
description | The aim of the article was to examine factors associated with completing enrollment milestones in the Together 5000 cohort of at-risk men (n = 8661), transmen (n = 53), and transwomen (n = 63) who have sex with men.
Between 2017 and 2018, participants completed an online enrollment survey and were offered opportunities to complete an incentivized secondary online survey as well as self-administered at-home HIV testing (OraSure). We explored factors associated with completing each study component.
In total, 8777 individuals completed our enrollment survey, 6166 (70.3%) completed the secondary survey, and 5010 returned the at-home HIV test kit that was mailed to them (81.3% of those mailed a kit). In our multivariable models, those who were White, with more years of education, were more likely to complete study components, although the magnitude of these associations was small. For example, 50.9% of those enrolled, 47.9% of those completing the secondary survey, and 46.8% of those completing HIV testing were persons of color—a statistically significant, but meaningfully insignificant decline.
These findings highlight the need for researchers to identify barriers that may prevent persons of color and younger individuals from participating in research studies. |
doi_str_mv | 10.1016/j.annepidem.2019.05.003 |
format | article |
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Between 2017 and 2018, participants completed an online enrollment survey and were offered opportunities to complete an incentivized secondary online survey as well as self-administered at-home HIV testing (OraSure). We explored factors associated with completing each study component.
In total, 8777 individuals completed our enrollment survey, 6166 (70.3%) completed the secondary survey, and 5010 returned the at-home HIV test kit that was mailed to them (81.3% of those mailed a kit). In our multivariable models, those who were White, with more years of education, were more likely to complete study components, although the magnitude of these associations was small. For example, 50.9% of those enrolled, 47.9% of those completing the secondary survey, and 46.8% of those completing HIV testing were persons of color—a statistically significant, but meaningfully insignificant decline.
These findings highlight the need for researchers to identify barriers that may prevent persons of color and younger individuals from participating in research studies.</description><identifier>ISSN: 1047-2797</identifier><identifier>EISSN: 1873-2585</identifier><identifier>DOI: 10.1016/j.annepidem.2019.05.003</identifier><identifier>PMID: 31182379</identifier><language>eng</language><publisher>United States: Elsevier Inc</publisher><subject>Adolescent ; Adult ; Attrition ; Bisexuality - statistics & numerical data ; Cohort Studies ; Female ; Gay and bisexual men ; HIV Infections - prevention & control ; HIV testing ; Homosexuality, Male - statistics & numerical data ; Humans ; Male ; Mass Screening ; Men who have sex with men ; Middle Aged ; Patient Selection ; Recruitment ; Vulnerable Populations</subject><ispartof>Annals of epidemiology, 2019-07, Vol.35, p.4-11</ispartof><rights>2019 Elsevier Inc.</rights><rights>Copyright © 2019 Elsevier Inc. All rights reserved.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c420t-6557b8932f3f5e4cb2447591cb28cfe648715542d677163755f3d7832e1e5d663</citedby><cites>FETCH-LOGICAL-c420t-6557b8932f3f5e4cb2447591cb28cfe648715542d677163755f3d7832e1e5d663</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,780,784,27924,27925</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/31182379$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Grov, Christian</creatorcontrib><creatorcontrib>Westmoreland, Drew A.</creatorcontrib><creatorcontrib>Carneiro, Pedro B.</creatorcontrib><creatorcontrib>Stief, Matthew</creatorcontrib><creatorcontrib>MacCrate, Caitlin</creatorcontrib><creatorcontrib>Mirzayi, Chloe</creatorcontrib><creatorcontrib>Pantalone, David W.</creatorcontrib><creatorcontrib>Patel, Viraj V.</creatorcontrib><creatorcontrib>Nash, Denis</creatorcontrib><title>Recruiting vulnerable populations to participate in HIV prevention research: findings from the Together 5000 cohort study</title><title>Annals of epidemiology</title><addtitle>Ann Epidemiol</addtitle><description>The aim of the article was to examine factors associated with completing enrollment milestones in the Together 5000 cohort of at-risk men (n = 8661), transmen (n = 53), and transwomen (n = 63) who have sex with men.
Between 2017 and 2018, participants completed an online enrollment survey and were offered opportunities to complete an incentivized secondary online survey as well as self-administered at-home HIV testing (OraSure). We explored factors associated with completing each study component.
In total, 8777 individuals completed our enrollment survey, 6166 (70.3%) completed the secondary survey, and 5010 returned the at-home HIV test kit that was mailed to them (81.3% of those mailed a kit). In our multivariable models, those who were White, with more years of education, were more likely to complete study components, although the magnitude of these associations was small. For example, 50.9% of those enrolled, 47.9% of those completing the secondary survey, and 46.8% of those completing HIV testing were persons of color—a statistically significant, but meaningfully insignificant decline.
These findings highlight the need for researchers to identify barriers that may prevent persons of color and younger individuals from participating in research studies.</description><subject>Adolescent</subject><subject>Adult</subject><subject>Attrition</subject><subject>Bisexuality - statistics & numerical data</subject><subject>Cohort Studies</subject><subject>Female</subject><subject>Gay and bisexual men</subject><subject>HIV Infections - prevention & control</subject><subject>HIV testing</subject><subject>Homosexuality, Male - statistics & numerical data</subject><subject>Humans</subject><subject>Male</subject><subject>Mass Screening</subject><subject>Men who have sex with men</subject><subject>Middle Aged</subject><subject>Patient Selection</subject><subject>Recruitment</subject><subject>Vulnerable Populations</subject><issn>1047-2797</issn><issn>1873-2585</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2019</creationdate><recordtype>article</recordtype><recordid>eNqFkE1P3DAQhi1UBBT4C62PvST1RxwnvSHEl4RUCQFXy2tPWK8SO7Wdlfbf49UC155mDs87r-ZB6CclNSW0_b2ptfcwOwtTzQjtayJqQvgROqOd5BUTnfhWdtLIislenqLvKW0IIbKT7ASdcko7xmV_hnZPYOLisvNveLuMHqJejYDnMC-jzi74hHPAs47ZGTfrDNh5fP_wiucIW_B7AkdIoKNZ_8GD87ZcSniIYcJ5Dfg5vEGZEYvSjk1Yh5hxyovdXaDjQY8JLj_mOXq5vXm-vq8e_949XF89VqZhJFetEHLV9ZwNfBDQmBVrGil6WpbODNA2naRCNMy2UtKWSyEGbmXHGVAQtm35Ofp1uDvH8G-BlNXkkoFx1B7CkhQrsqiQrSQFlQfUxJBShEHN0U067hQlau9dbdSXd7X3rohQxXtJ_vgoWVYT2K_cp-gCXB0AKK9uHUSVjANvwLoIJisb3H9L3gEAnJju</recordid><startdate>201907</startdate><enddate>201907</enddate><creator>Grov, Christian</creator><creator>Westmoreland, Drew A.</creator><creator>Carneiro, Pedro B.</creator><creator>Stief, Matthew</creator><creator>MacCrate, Caitlin</creator><creator>Mirzayi, Chloe</creator><creator>Pantalone, David W.</creator><creator>Patel, Viraj V.</creator><creator>Nash, Denis</creator><general>Elsevier Inc</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope></search><sort><creationdate>201907</creationdate><title>Recruiting vulnerable populations to participate in HIV prevention research: findings from the Together 5000 cohort study</title><author>Grov, Christian ; Westmoreland, Drew A. ; Carneiro, Pedro B. ; Stief, Matthew ; MacCrate, Caitlin ; Mirzayi, Chloe ; Pantalone, David W. ; Patel, Viraj V. ; Nash, Denis</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c420t-6557b8932f3f5e4cb2447591cb28cfe648715542d677163755f3d7832e1e5d663</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2019</creationdate><topic>Adolescent</topic><topic>Adult</topic><topic>Attrition</topic><topic>Bisexuality - statistics & numerical data</topic><topic>Cohort Studies</topic><topic>Female</topic><topic>Gay and bisexual men</topic><topic>HIV Infections - prevention & control</topic><topic>HIV testing</topic><topic>Homosexuality, Male - statistics & numerical data</topic><topic>Humans</topic><topic>Male</topic><topic>Mass Screening</topic><topic>Men who have sex with men</topic><topic>Middle Aged</topic><topic>Patient Selection</topic><topic>Recruitment</topic><topic>Vulnerable Populations</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Grov, Christian</creatorcontrib><creatorcontrib>Westmoreland, Drew A.</creatorcontrib><creatorcontrib>Carneiro, Pedro B.</creatorcontrib><creatorcontrib>Stief, Matthew</creatorcontrib><creatorcontrib>MacCrate, Caitlin</creatorcontrib><creatorcontrib>Mirzayi, Chloe</creatorcontrib><creatorcontrib>Pantalone, David W.</creatorcontrib><creatorcontrib>Patel, Viraj V.</creatorcontrib><creatorcontrib>Nash, Denis</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>Annals of epidemiology</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Grov, Christian</au><au>Westmoreland, Drew A.</au><au>Carneiro, Pedro B.</au><au>Stief, Matthew</au><au>MacCrate, Caitlin</au><au>Mirzayi, Chloe</au><au>Pantalone, David W.</au><au>Patel, Viraj V.</au><au>Nash, Denis</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Recruiting vulnerable populations to participate in HIV prevention research: findings from the Together 5000 cohort study</atitle><jtitle>Annals of epidemiology</jtitle><addtitle>Ann Epidemiol</addtitle><date>2019-07</date><risdate>2019</risdate><volume>35</volume><spage>4</spage><epage>11</epage><pages>4-11</pages><issn>1047-2797</issn><eissn>1873-2585</eissn><abstract>The aim of the article was to examine factors associated with completing enrollment milestones in the Together 5000 cohort of at-risk men (n = 8661), transmen (n = 53), and transwomen (n = 63) who have sex with men.
Between 2017 and 2018, participants completed an online enrollment survey and were offered opportunities to complete an incentivized secondary online survey as well as self-administered at-home HIV testing (OraSure). We explored factors associated with completing each study component.
In total, 8777 individuals completed our enrollment survey, 6166 (70.3%) completed the secondary survey, and 5010 returned the at-home HIV test kit that was mailed to them (81.3% of those mailed a kit). In our multivariable models, those who were White, with more years of education, were more likely to complete study components, although the magnitude of these associations was small. For example, 50.9% of those enrolled, 47.9% of those completing the secondary survey, and 46.8% of those completing HIV testing were persons of color—a statistically significant, but meaningfully insignificant decline.
These findings highlight the need for researchers to identify barriers that may prevent persons of color and younger individuals from participating in research studies.</abstract><cop>United States</cop><pub>Elsevier Inc</pub><pmid>31182379</pmid><doi>10.1016/j.annepidem.2019.05.003</doi><tpages>8</tpages><oa>free_for_read</oa></addata></record> |
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subjects | Adolescent Adult Attrition Bisexuality - statistics & numerical data Cohort Studies Female Gay and bisexual men HIV Infections - prevention & control HIV testing Homosexuality, Male - statistics & numerical data Humans Male Mass Screening Men who have sex with men Middle Aged Patient Selection Recruitment Vulnerable Populations |
title | Recruiting vulnerable populations to participate in HIV prevention research: findings from the Together 5000 cohort study |
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