"If You Want to Know About the Book, Ask the Author": Enhancing Community Engagement Through Participatory Research in Clinical Mental Health Settings

Participatory research, in which people with lived experience of the study phenomenon are involved as collaborators, has been conducted for decades; however, these innovations have struggled to take hold in mental health settings-until recently. The slow uptake of community partnered research in men...

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Bibliographic Details
Published in:Behavioral medicine (Washington, D.C.) D.C.), 2019-04, Vol.45 (2), p.177-187
Main Authors: Desai, Miraj U., Bellamy, Chyrell, Guy, Kimberly, Costa, Mark, O'Connell, Maria J., Davidson, Larry
Format: Article
Language:English
Subjects:
Clinical research
Community Participation - psychology
Community relations
Ethnic differences
Health disparities
Humans
Innovations
Low income areas
Medical schools
Mental disorders
Mental health
Mental health care
Mental Health Services
Participatory research
Patient Acceptance of Health Care - psychology
Program Development - methods
Psychiatry
Racial inequality
Social justice
Teams
Trust
Uptake
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Summary:Participatory research, in which people with lived experience of the study phenomenon are involved as collaborators, has been conducted for decades; however, these innovations have struggled to take hold in mental health settings-until recently. The slow uptake of community partnered research in mental health has been unfortunate, especially because this field already suffers from poor community relations, pervasive community mistrust, and racial and ethnic disparities. But now, people with lived experience of severe mental illness-long considered to be "incapable" of functioning as co-researchers-are beginning to be included on research teams. However, training and opportunities for conducting such work are still lacking. This report describes a two-year initiative to improve the quality and quantity of participatory research being conducted in a department of psychiatry at a large medical school, which culminated in an innovative training program for both researchers and patients, developed in direct collaboration with stakeholders. In addition to detailing this program, we also discuss the deep legacy of mental health mistrust and our own efforts to address issues of social justice and health equity.
ISSN:0896-4289
1940-4026
DOI:10.1080/08964289.2019.1587589