YouTube™ as a source of information for patients undergoing laryngectomy: a thematic analysis

• Published in: European archives of oto-rhino-laryngology 2019-11, Vol.276 (11), p.3213-3219
• Main Authors: Malik, T. A. M., Heywood, E. G., O’Connor, T. J., Baker, D. M., Marshall, J. H., Beasley, N.
• Format: Article
• Language: English
• Subjects: Head and Neck; Head and Neck Surgery; Humans; Information Dissemination - methods; Information Seeking Behavior; Internet; Laryngeal Neoplasms - psychology; Laryngeal Neoplasms - surgery; Laryngectomy - methods; Medicine; Medicine & Public Health; Neurosurgery; Otorhinolaryngology; Social Media
• ISSN: 0937-4477; 1434-4726
• DOI: 10.1007/s00405-019-05590-7

Purpose Total laryngectomy and end tracheal stoma formation are often required to treat advanced laryngeal cancer. Resources on the internet are commonly accessed by patients as a source of healthcare information. YouTube™, the most popular video-hosting website, is one such resource. The aims of this study were to assess the thematic content of the most viewed YouTube™ videos concerning laryngectomy for laryngeal cancer and to evaluate user response to these videos. Method A search of YouTube™ was performed and data were extracted from videos with > 100 views. Upload source, number of views, likes, dislikes and comments were collected and the content of comments was analysed. User response was compared between upload sources using Kruskal–Wallis testing. Inductive thematic analysis of video content was performed to identify overarching themes and subthemes. Results A total of 96 videos were identified, 16 uploaded by patients, 24 by individual healthcare professionals and 56 by professional healthcare institutions. There were 1214,503 views and no significant differences in the number of views, likes or dislikes between upload sources. Three overarching themes and 17 subthemes were identified. Comments were most frequently characterised as offering praise. Conclusion YouTube™ has been shown to be a popular platform for sharing information about laryngectomy for laryngeal cancer. There is a lack of data concerning the quality of this information, however, and future work should focus on assessing this. Trusted institutions could make use of this medium to disseminate high-quality information to their patients, and to the wider public.