A thematic analysis of in-hospital end-of-life care experiences of surviving family members

While end-of-life care (EoLC) priorities for patients dying in the hospital are well-documented, few data characterize needs and experiences of their family members. We conducted thematic analysis of audio recorded interviews of 18 bereaved family members to elucidate these experiences. Participants...

Full description

Saved in:
Bibliographic Details
Published in:Death studies 2021-07, Vol.45 (6), p.469-479
Main Authors: Johnson, Shannon, Kelemen, Anne, Grimes, Coleia, Stein, Susannah, Groninger, Hunter
Format: Article
Language:English
Subjects:
Health technology assessment
Palliative care
Citations: Items that this one cites
Items that cite this one
Online Access:Get full text
Tags: Add Tag
No Tags, Be the first to tag this record!
Description
Summary:While end-of-life care (EoLC) priorities for patients dying in the hospital are well-documented, few data characterize needs and experiences of their family members. We conducted thematic analysis of audio recorded interviews of 18 bereaved family members to elucidate these experiences. Participants' memories were organized into two parent themes: those related to satisfaction with the care received and effective communication; those identifying shortcomings in patient care, hospital-family communication, hospital environment, and care burden on the part of family members. These findings provide insight to enhance services to patients and their families at end-of-life and improve postmortem and bereavement services.
ISSN:0748-1187
1091-7683
DOI:10.1080/07481187.2019.1648341