Applying dignity of risk principles to improve quality of life for vulnerable persons

• Published in: International journal of geriatric psychiatry 2020-01, Vol.35 (1), p.122-130
• Main Authors: Woolford, Marta H., Lacy‐Vawdon, Cassandra, Bugeja, Lyndal, Weller, Carolina, Ibrahim, Joseph E.
• Format: Article
• Language: English
• Subjects: Autonomy; Decision making; Elder care; Geriatric psychiatry; nursing home; Qualitative research; Quality of life; residential aged care; Well being
• ISSN: 0885-6230; 1099-1166
• DOI: 10.1002/gps.5228

Objectives Freedom of choice impacts quality of life. Expressed through dignity of risk (DoR), nursing home (NH) residents should be afforded the dignity to take risks to enhance well‐being. How DoR is understood and implemented in the context of aged care remains largely unknown. This study explored the meaning and the barriers and facilitators to applying DoR to NH residents. Methods Qualitative study, comprising semistructured interviews. Senior policy makers and advocate guardians working in the aged care or disability sector were invited to participate. Recruitment continued until data saturation was reached. Two researchers coded interviews, applying inductive and thematic analysis. Results Fourteen participants took part during 2016‐2017. Analysis demonstrated uniformity in participants' description of DoR, comprising four elements: (a) individuals are at the centre of decision making; (b) life involves risk; (c) individuals must have choice; and (d) DoR is a continuum of experiences. Three main barriers for implementing DoR into practice were identified: (a) balancing autonomy with risks; (b) situational nature of DoR; and (c) taking responsibility for risk. Conclusion The novel findings provide an explicit understanding of DoR and the facilitators and barriers to applying the principle in the NH setting. These findings inform those who engage in making and implementing choices in the presence of risk for vulnerable clients. To translate the multifaceted elements of DoR into practice requires the development of unambiguous policies/guidelines about who will be responsibility for potential risks that may arise from residents' choices. Further, education programmes supporting care staff/management to enact resident choices in the presence of real or perceived risk are required.