Exploring illness denial of LVAD patients in cardiac rehabilitation and their caregivers: A preliminary study

• Published in: Artificial organs 2020-06, Vol.44 (6), p.655-660
• Main Authors: Rossi Ferrario, Silvia, Panzeri, Anna
• Format: Article
• Language: English
• Subjects: Adult; Aged; Cardiac Rehabilitation - psychology; Cardiovascular disease; caregiver strain; Caregivers; Caregivers - psychology; Congestive heart failure; denial; Denial, Psychological; Discharge; Emotional Adjustment; Emotions; Female; health; Heart Failure - diagnosis; Heart Failure - psychology; Heart Failure - therapy; Heart-Assist Devices - psychology; Humans; illness; Illnesses; LVAD; Male; Middle Aged; Postoperative Period; psychology; Quality of Life; Questionnaires; Rehabilitation; Surveys and Questionnaires - statistics & numerical data; Ventricle; Ventricular assist devices
• ISSN: 0160-564X; 1525-1594
• DOI: 10.1111/aor.13630

Implantable left ventricular assist devices (LVADs) are increasingly used for patients with heart failure. Despite this evidence, the psychological processes affecting implanted patients and their caregivers are only marginally studied. While common emotional reactions, such as anxiety and depression already receive attention, very little is known about the course of caregiver strain, illness denial, and their reciprocal relation. This preliminary study aims at exploring these critical topics in a cardiac rehabilitation setting, besides offering indications for future research. A total of 44 LVAD patients and caregivers were administered specific questionnaires at admission and discharge from cardiac rehabilitation. Overall, questionnaires completed at discharge showed a positive improvement in the emotional measures used. However, they also showed a worsening in the illness denial measure. We suggest that the denial process may prepare patients and caregivers in returning home. Moreover, we conclude that studying only the common emotional reactions may limit the understanding of the psychological process adaptation to severe illness.