Health-related quality of life among transgender and gender expansive youth at a rural gender wellness clinic

Purpose To address a critical gap in the existing Health-Related Quality of Life (HRQOL) literature by quantifying and describing HRQOL among transgender and gender expansive (TG/GE) youth at a rural gender clinic and comparing the HRQOL of these youth to age-stratified United States (U.S.) populati...

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Published in:Quality of life research 2020-06, Vol.29 (6), p.1597-1607
Main Authors: O’Bryan, Jane, Scribani, Melissa, Leon, Kimberly, Tallman, Nancy, Wolf-Gould, Christopher, Wolf-Gould, Carolyn, Gadomski, Anne
Format: Article
Language:English
Subjects:
Anxiety
Gender
Medicine
Medicine & Public Health
Mental health
Population
Public Health
Quality of life
Quality of Life Research
Sociology
Teenagers
Transgender persons
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container_issue 6
container_start_page 1597
container_title Quality of life research
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creator O’Bryan, Jane
Scribani, Melissa
Leon, Kimberly
Tallman, Nancy
Wolf-Gould, Christopher
Wolf-Gould, Carolyn
Gadomski, Anne
description Purpose To address a critical gap in the existing Health-Related Quality of Life (HRQOL) literature by quantifying and describing HRQOL among transgender and gender expansive (TG/GE) youth at a rural gender clinic and comparing the HRQOL of these youth to age-stratified United States (U.S.) population standards. Methods This cross-sectional study includes results of the baseline HRQOL assessment of 141 TG/GE patients enrolled in the Gender Wellness Center (GWC) Pediatric Patient Registry. HRQOL was assessed using the Child Health Questionnaire-Child Form 87 (CHQ-CF87; ages 
doi_str_mv 10.1007/s11136-020-02430-8
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Methods This cross-sectional study includes results of the baseline HRQOL assessment of 141 TG/GE patients enrolled in the Gender Wellness Center (GWC) Pediatric Patient Registry. HRQOL was assessed using the Child Health Questionnaire-Child Form 87 (CHQ-CF87; ages &lt; 18) and the Short Form-36 (SF-36v2; ages 18–21). Mean subscale scores were compared to the most current U.S. population standards available. Results On all but one of the CHQ-CF87 subscales, TG/GE youth scored significantly lower than 2015–2016 U.S. general population youth and youth with two chronic conditions. On the SF-36v2, TG/GE youth scored significantly higher than 2009 U.S. standards on all physical health domains but lower on all but one of the mental health domains. Conclusions Cross-sectional HRQOL data from a registry of TG/GE youth indicate significantly poorer mental health measures as compared with the U.S. general population. Longitudinal assessments are needed to evaluate whether HRQOL improves with gender-affirming care. Future studies should aim to identify sociocultural factors at the intersection of rurality and health that contribute to diminished HRQOL among rural TG/GE youth.</description><identifier>ISSN: 0962-9343</identifier><identifier>EISSN: 1573-2649</identifier><identifier>DOI: 10.1007/s11136-020-02430-8</identifier><identifier>PMID: 32002786</identifier><language>eng</language><publisher>Cham: Springer International Publishing</publisher><subject>Anxiety ; Gender ; Medicine ; Medicine &amp; Public Health ; Mental health ; Population ; Public Health ; Quality of life ; Quality of Life Research ; Sociology ; Teenagers ; Transgender persons</subject><ispartof>Quality of life research, 2020-06, Vol.29 (6), p.1597-1607</ispartof><rights>Springer Nature Switzerland AG 2020</rights><rights>Springer Nature Switzerland AG 2020.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c375t-89b21abe3e77295cd0858f98d0f57336243491e7cb1961af86f2a8665c7fe68c3</citedby><cites>FETCH-LOGICAL-c375t-89b21abe3e77295cd0858f98d0f57336243491e7cb1961af86f2a8665c7fe68c3</cites><orcidid>0000-0003-2909-8200</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.proquest.com/docview/2407215681/fulltextPDF?pq-origsite=primo$$EPDF$$P50$$Gproquest$$H</linktopdf><linktohtml>$$Uhttps://www.proquest.com/docview/2407215681?pq-origsite=primo$$EHTML$$P50$$Gproquest$$H</linktohtml><link.rule.ids>314,780,784,11686,27922,27923,36058,36059,44361,74665</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/32002786$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>O’Bryan, Jane</creatorcontrib><creatorcontrib>Scribani, Melissa</creatorcontrib><creatorcontrib>Leon, Kimberly</creatorcontrib><creatorcontrib>Tallman, Nancy</creatorcontrib><creatorcontrib>Wolf-Gould, Christopher</creatorcontrib><creatorcontrib>Wolf-Gould, Carolyn</creatorcontrib><creatorcontrib>Gadomski, Anne</creatorcontrib><title>Health-related quality of life among transgender and gender expansive youth at a rural gender wellness clinic</title><title>Quality of life research</title><addtitle>Qual Life Res</addtitle><addtitle>Qual Life Res</addtitle><description>Purpose To address a critical gap in the existing Health-Related Quality of Life (HRQOL) literature by quantifying and describing HRQOL among transgender and gender expansive (TG/GE) youth at a rural gender clinic and comparing the HRQOL of these youth to age-stratified United States (U.S.) population standards. Methods This cross-sectional study includes results of the baseline HRQOL assessment of 141 TG/GE patients enrolled in the Gender Wellness Center (GWC) Pediatric Patient Registry. HRQOL was assessed using the Child Health Questionnaire-Child Form 87 (CHQ-CF87; ages &lt; 18) and the Short Form-36 (SF-36v2; ages 18–21). Mean subscale scores were compared to the most current U.S. population standards available. Results On all but one of the CHQ-CF87 subscales, TG/GE youth scored significantly lower than 2015–2016 U.S. general population youth and youth with two chronic conditions. On the SF-36v2, TG/GE youth scored significantly higher than 2009 U.S. standards on all physical health domains but lower on all but one of the mental health domains. Conclusions Cross-sectional HRQOL data from a registry of TG/GE youth indicate significantly poorer mental health measures as compared with the U.S. general population. Longitudinal assessments are needed to evaluate whether HRQOL improves with gender-affirming care. Future studies should aim to identify sociocultural factors at the intersection of rurality and health that contribute to diminished HRQOL among rural TG/GE youth.</description><subject>Anxiety</subject><subject>Gender</subject><subject>Medicine</subject><subject>Medicine &amp; Public Health</subject><subject>Mental health</subject><subject>Population</subject><subject>Public Health</subject><subject>Quality of life</subject><subject>Quality of Life Research</subject><subject>Sociology</subject><subject>Teenagers</subject><subject>Transgender persons</subject><issn>0962-9343</issn><issn>1573-2649</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2020</creationdate><recordtype>article</recordtype><sourceid>M0C</sourceid><recordid>eNp9kU1P3DAQhq2qVVlo_0APlaVeegkd24k_jgjRgoTUS3u2vM54CXKcxU4o--9xuwtIHHqwxrKfeefjJeQTg1MGoL4VxpiQDXCopxXQ6DdkxTolGi5b85aswEjeGNGKI3Jcyi0AaAP8PTkSHIArLVdkvEQX55smY3Qz9vRucXGYd3QKNA4BqRuntKFzdqlsMPWYqUs9PVzxYVvfh3uku2mZb6ibqaN5yS4-EX8wxoSlUB-HNPgP5F1wseDHQzwhv79f_Dq_bK5__rg6P7tuvFDd3Giz5sytUaBS3HS-B93pYHQPoU4nZB22NQyVXzMjmQtaBu60lJ1XAaX24oR83etu83S3YJntOBRfe3EJp6VYLjoAI5gyFf3yCr2dlpxqd5a3oDjrpGaV4nvK56mUjMFu8zC6vLMM7F8z7N4MW82w_8ywuiZ9Pkgv6xH755Sn7VdA7IFSv9IG80vt_8g-AgmklIk</recordid><startdate>20200601</startdate><enddate>20200601</enddate><creator>O’Bryan, Jane</creator><creator>Scribani, Melissa</creator><creator>Leon, Kimberly</creator><creator>Tallman, Nancy</creator><creator>Wolf-Gould, Christopher</creator><creator>Wolf-Gould, Carolyn</creator><creator>Gadomski, Anne</creator><general>Springer International Publishing</general><general>Springer Nature B.V</general><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7RV</scope><scope>7WY</scope><scope>7WZ</scope><scope>7X7</scope><scope>7XB</scope><scope>87Z</scope><scope>88E</scope><scope>88G</scope><scope>8AO</scope><scope>8C1</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>8FL</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>BEZIV</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FRNLG</scope><scope>FYUFA</scope><scope>F~G</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>K60</scope><scope>K6~</scope><scope>K9.</scope><scope>KB0</scope><scope>L.-</scope><scope>M0C</scope><scope>M0S</scope><scope>M1P</scope><scope>M2M</scope><scope>NAPCQ</scope><scope>PQBIZ</scope><scope>PQBZA</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PSYQQ</scope><scope>Q9U</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0003-2909-8200</orcidid></search><sort><creationdate>20200601</creationdate><title>Health-related quality of life among transgender and gender expansive youth at a rural gender wellness clinic</title><author>O’Bryan, Jane ; 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source JSTOR Archival Journals and Primary Sources Collection; ABI/INFORM Global; Springer Nature:Jisc Collections:Springer Nature Read and Publish 2023-2025: Springer Reading List
subjects Anxiety
Gender
Medicine
Medicine & Public Health
Mental health
Population
Public Health
Quality of life
Quality of Life Research
Sociology
Teenagers
Transgender persons
title Health-related quality of life among transgender and gender expansive youth at a rural gender wellness clinic
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