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Faith, Family, and Social Networks: Effective Strategies for Recruiting Brazilian Immigrants in Maternal and Child Health Research
Participation of racial/ethnic minority and immigrant populations in research studies is essential to understand and address health disparities. Nonetheless, these populations are often underrepresented in research because of limited participation that may be due to barriers to participation such as...
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Published in: | Journal of racial and ethnic health disparities 2021-02, Vol.8 (1), p.47-59 |
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creator | Lindsay, Ana Cristina Wallington, Sherrie F. Rabello, Luísa M. Alves, Amanda De Sá Melo Arruda, Carlos André Moura Rocha, Thaís C. De Andrade, Gabriela P. Vianna, Gabriela V.B. de Souza Mezzavilla, Raquel de Oliveira, Mariana Gonçalves Hasselmann, Maria Helena Machado, Márcia M. T. Greaney, Mary L. |
description | Participation of racial/ethnic minority and immigrant populations in research studies is essential to understand and address health disparities. Nonetheless, these populations are often underrepresented in research because of limited participation that may be due to barriers to participation such as fear and mistrust of research, lack of or limited access to healthcare and social services, time and employment constraints, participation-associated costs (e.g., travel costs), language barriers, undocumented status, and cultural differences. Brazilians comprise a rapidly growing immigrant population group in the United States (US), and there is a need to identify and understand factors affecting the health status of Brazilian immigrants that are amenable to intervention. Therefore, this paper presents effective strategies and lessons learned from outreach and recruiting Brazilian immigrants living in the US to enroll in maternal and child health research studies. Using a data recruitment log, we collected quantitative and qualitative data on recruitment strategies that were employed to recruit pregnant women and parents into six health research studies. Direct recruitment strategies included personal contacts of research staff and recruiting partners, and on-site, in-person outreach and recruitment at faith- and community-based events (e.g., meeting participants after church services, at faith-based community events), and private and social events (e.g., household parties) conducted by bilingual, bicultural research assistants who were members of the priority population. We also used snowball sampling as a recruitment strategy by asking enrolled participants to share information about our studies and encourage their family and friends to participate. Indirect recruitment methods included posting flyers at local businesses, social service agencies, faith-based and healthcare organizations, and posting announcements on social media (Facebook). Direct recruitment methods in combination with snowball sampling were the most successful strategies for recruiting Brazilian immigrant parents, while social media was an effective indirect method for recruiting first-time pregnant women. In addition, analyses of qualitative data found that research staff’s understanding of the sociocultural context of the target population combined with the use of linguistically and culturally sensitive recruitment strategies tailored to meet the needs of Brazilian immigrants was importa |
doi_str_mv | 10.1007/s40615-020-00753-3 |
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T. ; Greaney, Mary L.</creator><creatorcontrib>Lindsay, Ana Cristina ; Wallington, Sherrie F. ; Rabello, Luísa M. ; Alves, Amanda De Sá Melo ; Arruda, Carlos André Moura ; Rocha, Thaís C. ; De Andrade, Gabriela P. ; Vianna, Gabriela V.B. ; de Souza Mezzavilla, Raquel ; de Oliveira, Mariana Gonçalves ; Hasselmann, Maria Helena ; Machado, Márcia M. T. ; Greaney, Mary L.</creatorcontrib><description>Participation of racial/ethnic minority and immigrant populations in research studies is essential to understand and address health disparities. Nonetheless, these populations are often underrepresented in research because of limited participation that may be due to barriers to participation such as fear and mistrust of research, lack of or limited access to healthcare and social services, time and employment constraints, participation-associated costs (e.g., travel costs), language barriers, undocumented status, and cultural differences. Brazilians comprise a rapidly growing immigrant population group in the United States (US), and there is a need to identify and understand factors affecting the health status of Brazilian immigrants that are amenable to intervention. Therefore, this paper presents effective strategies and lessons learned from outreach and recruiting Brazilian immigrants living in the US to enroll in maternal and child health research studies. Using a data recruitment log, we collected quantitative and qualitative data on recruitment strategies that were employed to recruit pregnant women and parents into six health research studies. Direct recruitment strategies included personal contacts of research staff and recruiting partners, and on-site, in-person outreach and recruitment at faith- and community-based events (e.g., meeting participants after church services, at faith-based community events), and private and social events (e.g., household parties) conducted by bilingual, bicultural research assistants who were members of the priority population. We also used snowball sampling as a recruitment strategy by asking enrolled participants to share information about our studies and encourage their family and friends to participate. Indirect recruitment methods included posting flyers at local businesses, social service agencies, faith-based and healthcare organizations, and posting announcements on social media (Facebook). Direct recruitment methods in combination with snowball sampling were the most successful strategies for recruiting Brazilian immigrant parents, while social media was an effective indirect method for recruiting first-time pregnant women. In addition, analyses of qualitative data found that research staff’s understanding of the sociocultural context of the target population combined with the use of linguistically and culturally sensitive recruitment strategies tailored to meet the needs of Brazilian immigrants was important for overcoming barriers to participation and facilitating successful recruitment and enrollment of participants. Study findings provide information on a suite of effective strategies and lessons learned for reaching, recruiting, and enrolling Brazilian immigrants in maternal and child health research. Future studies should continue to purposefully collect information on recruitment strategies and disseminate the findings, which will be instrumental in researchers’ efforts to increase participation of ethnic minority and immigrant populations such as Brazilians in health research.</description><identifier>ISSN: 2197-3792</identifier><identifier>EISSN: 2196-8837</identifier><identifier>DOI: 10.1007/s40615-020-00753-3</identifier><identifier>PMID: 32458344</identifier><language>eng</language><publisher>Cham: Springer International Publishing</publisher><subject>Barriers ; Children ; Cultural differences ; Cultural factors ; Cultural sensitivity ; Digital media ; Employment ; Epidemiology ; Ethnic factors ; Ethnic groups ; Ethnicity ; Families & family life ; Health care ; Health care industry ; Health disparities ; Health research ; Health services ; Health status ; Immigrants ; Information ; Kinship networks ; Local businesses ; Mass media effects ; Maternal characteristics ; Medical research ; Medicine ; Medicine & Public Health ; Minority & ethnic groups ; Minority groups ; Mortality ; Mothers ; Parents ; Parents & parenting ; Participation ; Population studies ; Populations ; Pregnancy ; Qualitative analysis ; Qualitative research ; Quality of Life Research ; Recruitment ; Religion ; Sampling ; Snowball sampling ; Social agencies ; Social Inequality ; Social media ; Social networks ; Social organization ; Social services ; Social Structure ; Sociocultural factors ; Strategies ; Undocumented immigrants ; Women ; Womens health</subject><ispartof>Journal of racial and ethnic health disparities, 2021-02, Vol.8 (1), p.47-59</ispartof><rights>W. Montague Cobb-NMA Health Institute 2020</rights><rights>W. Montague Cobb-NMA Health Institute 2020.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c375t-eee14a7dc82a66d37247bf1c73045fadf93ee9dd9b272ca496b7b7065d2c56e3</citedby><cites>FETCH-LOGICAL-c375t-eee14a7dc82a66d37247bf1c73045fadf93ee9dd9b272ca496b7b7065d2c56e3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://www.proquest.com/docview/2932560838?pq-origsite=primo$$EHTML$$P50$$Gproquest$$H</linktohtml><link.rule.ids>314,780,784,12846,21394,21395,27344,27924,27925,30999,33611,33612,33774,34530,34531,43733,44115</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/32458344$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Lindsay, Ana Cristina</creatorcontrib><creatorcontrib>Wallington, Sherrie F.</creatorcontrib><creatorcontrib>Rabello, Luísa M.</creatorcontrib><creatorcontrib>Alves, Amanda De Sá Melo</creatorcontrib><creatorcontrib>Arruda, Carlos André Moura</creatorcontrib><creatorcontrib>Rocha, Thaís C.</creatorcontrib><creatorcontrib>De Andrade, Gabriela P.</creatorcontrib><creatorcontrib>Vianna, Gabriela V.B.</creatorcontrib><creatorcontrib>de Souza Mezzavilla, Raquel</creatorcontrib><creatorcontrib>de Oliveira, Mariana Gonçalves</creatorcontrib><creatorcontrib>Hasselmann, Maria Helena</creatorcontrib><creatorcontrib>Machado, Márcia M. T.</creatorcontrib><creatorcontrib>Greaney, Mary L.</creatorcontrib><title>Faith, Family, and Social Networks: Effective Strategies for Recruiting Brazilian Immigrants in Maternal and Child Health Research</title><title>Journal of racial and ethnic health disparities</title><addtitle>J. Racial and Ethnic Health Disparities</addtitle><addtitle>J Racial Ethn Health Disparities</addtitle><description>Participation of racial/ethnic minority and immigrant populations in research studies is essential to understand and address health disparities. Nonetheless, these populations are often underrepresented in research because of limited participation that may be due to barriers to participation such as fear and mistrust of research, lack of or limited access to healthcare and social services, time and employment constraints, participation-associated costs (e.g., travel costs), language barriers, undocumented status, and cultural differences. Brazilians comprise a rapidly growing immigrant population group in the United States (US), and there is a need to identify and understand factors affecting the health status of Brazilian immigrants that are amenable to intervention. Therefore, this paper presents effective strategies and lessons learned from outreach and recruiting Brazilian immigrants living in the US to enroll in maternal and child health research studies. Using a data recruitment log, we collected quantitative and qualitative data on recruitment strategies that were employed to recruit pregnant women and parents into six health research studies. Direct recruitment strategies included personal contacts of research staff and recruiting partners, and on-site, in-person outreach and recruitment at faith- and community-based events (e.g., meeting participants after church services, at faith-based community events), and private and social events (e.g., household parties) conducted by bilingual, bicultural research assistants who were members of the priority population. We also used snowball sampling as a recruitment strategy by asking enrolled participants to share information about our studies and encourage their family and friends to participate. Indirect recruitment methods included posting flyers at local businesses, social service agencies, faith-based and healthcare organizations, and posting announcements on social media (Facebook). Direct recruitment methods in combination with snowball sampling were the most successful strategies for recruiting Brazilian immigrant parents, while social media was an effective indirect method for recruiting first-time pregnant women. In addition, analyses of qualitative data found that research staff’s understanding of the sociocultural context of the target population combined with the use of linguistically and culturally sensitive recruitment strategies tailored to meet the needs of Brazilian immigrants was important for overcoming barriers to participation and facilitating successful recruitment and enrollment of participants. Study findings provide information on a suite of effective strategies and lessons learned for reaching, recruiting, and enrolling Brazilian immigrants in maternal and child health research. Future studies should continue to purposefully collect information on recruitment strategies and disseminate the findings, which will be instrumental in researchers’ efforts to increase participation of ethnic minority and immigrant populations such as Brazilians in health research.</description><subject>Barriers</subject><subject>Children</subject><subject>Cultural differences</subject><subject>Cultural factors</subject><subject>Cultural sensitivity</subject><subject>Digital media</subject><subject>Employment</subject><subject>Epidemiology</subject><subject>Ethnic factors</subject><subject>Ethnic groups</subject><subject>Ethnicity</subject><subject>Families & family life</subject><subject>Health care</subject><subject>Health care industry</subject><subject>Health disparities</subject><subject>Health research</subject><subject>Health services</subject><subject>Health status</subject><subject>Immigrants</subject><subject>Information</subject><subject>Kinship networks</subject><subject>Local businesses</subject><subject>Mass media effects</subject><subject>Maternal characteristics</subject><subject>Medical research</subject><subject>Medicine</subject><subject>Medicine & Public Health</subject><subject>Minority & ethnic groups</subject><subject>Minority groups</subject><subject>Mortality</subject><subject>Mothers</subject><subject>Parents</subject><subject>Parents & parenting</subject><subject>Participation</subject><subject>Population studies</subject><subject>Populations</subject><subject>Pregnancy</subject><subject>Qualitative analysis</subject><subject>Qualitative research</subject><subject>Quality of Life Research</subject><subject>Recruitment</subject><subject>Religion</subject><subject>Sampling</subject><subject>Snowball sampling</subject><subject>Social agencies</subject><subject>Social Inequality</subject><subject>Social media</subject><subject>Social networks</subject><subject>Social organization</subject><subject>Social services</subject><subject>Social Structure</subject><subject>Sociocultural factors</subject><subject>Strategies</subject><subject>Undocumented immigrants</subject><subject>Women</subject><subject>Womens health</subject><issn>2197-3792</issn><issn>2196-8837</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>7QJ</sourceid><sourceid>ALSLI</sourceid><sourceid>BHHNA</sourceid><sourceid>HEHIP</sourceid><sourceid>M2S</sourceid><recordid>eNp9kU1PFTEUhhsjAYL8ARamiRsXDPa7M-7khiskgImwbzrtmXuL84FtR4NLf7m9XNDEBaue5jzv0zQvQkeUnFBC9IckiKKyIoxU5Sp5xV-hfUYbVdU1168fZ11x3bA9dJjSHSGEMikbrnbRHmdC1lyIffR7aUNeH-OlHUL_cIzt6PHN5ILt8TXkn1P8lj7is64Dl8MPwDc52gyrAAl3U8RfwcU55DCu8Gm0v0If7IgvhiGsoh1zwmHEV4WPY9FtzIt16D0-B9vndQknsNGt36CdzvYJDp_OA3S7PLtdnFeXXz5fLD5dVo5rmSsAoMJq72pmlfJcM6HbjjrNiZCd9V3DARrvm5Zp5qxoVKtbTZT0zEkF_AC932rv4_R9hpTNEJKDvrcjTHMyTBDNqVBaF_Tdf-jdNG8-UaiGM6lIzetCsS3l4pRShM7cxzDY-GAoMZuOzLYjUzoyjx0ZXkJvn9RzO4D_G3lupAB8C6SyGlcQ_739gvYPq7ecnQ</recordid><startdate>20210201</startdate><enddate>20210201</enddate><creator>Lindsay, Ana Cristina</creator><creator>Wallington, Sherrie F.</creator><creator>Rabello, Luísa M.</creator><creator>Alves, Amanda De Sá Melo</creator><creator>Arruda, Carlos André Moura</creator><creator>Rocha, Thaís C.</creator><creator>De Andrade, Gabriela P.</creator><creator>Vianna, Gabriela V.B.</creator><creator>de Souza Mezzavilla, Raquel</creator><creator>de Oliveira, Mariana Gonçalves</creator><creator>Hasselmann, Maria Helena</creator><creator>Machado, Márcia M. 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T.</au><au>Greaney, Mary L.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Faith, Family, and Social Networks: Effective Strategies for Recruiting Brazilian Immigrants in Maternal and Child Health Research</atitle><jtitle>Journal of racial and ethnic health disparities</jtitle><stitle>J. Racial and Ethnic Health Disparities</stitle><addtitle>J Racial Ethn Health Disparities</addtitle><date>2021-02-01</date><risdate>2021</risdate><volume>8</volume><issue>1</issue><spage>47</spage><epage>59</epage><pages>47-59</pages><issn>2197-3792</issn><eissn>2196-8837</eissn><abstract>Participation of racial/ethnic minority and immigrant populations in research studies is essential to understand and address health disparities. Nonetheless, these populations are often underrepresented in research because of limited participation that may be due to barriers to participation such as fear and mistrust of research, lack of or limited access to healthcare and social services, time and employment constraints, participation-associated costs (e.g., travel costs), language barriers, undocumented status, and cultural differences. Brazilians comprise a rapidly growing immigrant population group in the United States (US), and there is a need to identify and understand factors affecting the health status of Brazilian immigrants that are amenable to intervention. Therefore, this paper presents effective strategies and lessons learned from outreach and recruiting Brazilian immigrants living in the US to enroll in maternal and child health research studies. Using a data recruitment log, we collected quantitative and qualitative data on recruitment strategies that were employed to recruit pregnant women and parents into six health research studies. Direct recruitment strategies included personal contacts of research staff and recruiting partners, and on-site, in-person outreach and recruitment at faith- and community-based events (e.g., meeting participants after church services, at faith-based community events), and private and social events (e.g., household parties) conducted by bilingual, bicultural research assistants who were members of the priority population. We also used snowball sampling as a recruitment strategy by asking enrolled participants to share information about our studies and encourage their family and friends to participate. Indirect recruitment methods included posting flyers at local businesses, social service agencies, faith-based and healthcare organizations, and posting announcements on social media (Facebook). Direct recruitment methods in combination with snowball sampling were the most successful strategies for recruiting Brazilian immigrant parents, while social media was an effective indirect method for recruiting first-time pregnant women. In addition, analyses of qualitative data found that research staff’s understanding of the sociocultural context of the target population combined with the use of linguistically and culturally sensitive recruitment strategies tailored to meet the needs of Brazilian immigrants was important for overcoming barriers to participation and facilitating successful recruitment and enrollment of participants. Study findings provide information on a suite of effective strategies and lessons learned for reaching, recruiting, and enrolling Brazilian immigrants in maternal and child health research. Future studies should continue to purposefully collect information on recruitment strategies and disseminate the findings, which will be instrumental in researchers’ efforts to increase participation of ethnic minority and immigrant populations such as Brazilians in health research.</abstract><cop>Cham</cop><pub>Springer International Publishing</pub><pmid>32458344</pmid><doi>10.1007/s40615-020-00753-3</doi><tpages>13</tpages></addata></record> |
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subjects | Barriers Children Cultural differences Cultural factors Cultural sensitivity Digital media Employment Epidemiology Ethnic factors Ethnic groups Ethnicity Families & family life Health care Health care industry Health disparities Health research Health services Health status Immigrants Information Kinship networks Local businesses Mass media effects Maternal characteristics Medical research Medicine Medicine & Public Health Minority & ethnic groups Minority groups Mortality Mothers Parents Parents & parenting Participation Population studies Populations Pregnancy Qualitative analysis Qualitative research Quality of Life Research Recruitment Religion Sampling Snowball sampling Social agencies Social Inequality Social media Social networks Social organization Social services Social Structure Sociocultural factors Strategies Undocumented immigrants Women Womens health |
title | Faith, Family, and Social Networks: Effective Strategies for Recruiting Brazilian Immigrants in Maternal and Child Health Research |
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