Public education materials about Vascular Composite Allotransplantation and donation in the United States: Current scope and limitations

As the field of Vascular Composite Allotransplantation (VCA) grows, demand for VCA donations will increase. The public should be made aware of this treatment option to support patients' informed decision‐making and authorization for deceased donation. We assessed the availability and quality of...

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Bibliographic Details
Published in:Clinical transplantation 2020-11, Vol.34 (11), p.e14066-n/a
Main Authors: Van Pilsum Rasmussen, Sarah E., Uriarte, Jefferson, Anderson, Naomi, Doby, Brianna, Ferzola, Alexander, Sung, Hannah, Cooney, Carisa, Brandacher, Gerald, Gordon, Elisa, Segev, Dorry L., Henderson, Macey L.
Format: Article
Language:English
Subjects:
content analysis
education
reconstructive transplantation
vascular composite allograft
Vascular Composite Allotransplantation
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Summary:As the field of Vascular Composite Allotransplantation (VCA) grows, demand for VCA donations will increase. The public should be made aware of this treatment option to support patients' informed decision‐making and authorization for deceased donation. We assessed the availability and quality of existing VCA public education materials from organ procurement organizations (OPOs), transplant centers, the Organ Procurement and Transplant Network, Veterans Affairs, and the Department of Defense. A content analysis was performed to identify topics covered and important gaps. In total, 1314 public education materials were analyzed, including OPO Facebook posts (61.6%), OPO Twitter posts (29.9%), websites (6.4%), and written documents (eg, fact sheets, research reports) (2.1%). Upper extremity (34.7%) and face (34.5%) transplants were more commonly covered than reproductive (6.4%) or other VCA types (2.8%). Most materials (76.6%) referenced a specific VCA story. However, few materials described which patient population could benefit from VCA (eg, Veterans, amputees, burn victims, 16.4%), the authorization requirements for VCA donation (6.6%), or the appearance of transplanted VCA organs (1.2%). Current VCA public education materials do not adequately educate the public. More comprehensive education materials are needed to prepare the public to authorize VCA donation, become potential donors, or learn about transplant options.
ISSN:0902-0063
1399-0012
DOI:10.1111/ctr.14066