Family Health History–Based Cancer Prevention Training for Community Health Workers

• Published in: American journal of preventive medicine 2021-03, Vol.60 (3), p.e159-e167
• Main Authors: Chen, Wei-Ju, Zhao, Shixi, Stelzig, Donaji, Nimmons, Katharine M., Dhar, Shweta U., Eble, Tanya N., Martinez, Denise, Yeh, Yu-Lyu, Chen, Lei-Shih
• Format: Article
• Language: English
• ISSN: 0749-3797; 1873-2607
• DOI: 10.1016/j.amepre.2020.09.019

Cancer is the second leading cause of death in the U.S. Utilizing family health history in cancer prevention holds promise in lessening the burden of cancer. Nevertheless, family health history is underutilized in public health and preventive medicine. Community health workers, also known as lay health educators, are ideal candidates to offer basic cancer family history–based education and services to the general public. The authors developed the first cancer family history–based genomics training program in cancer prevention tailored for community health workers. This paper details the development and pilot testing findings of the training. Specifically, a multidisciplinary research team of geneticists, genetic counselors, health educators, community health workers, and community health worker instructors developed a 7-module, 6-hour, bilingual (English and Spanish) cancer family history–based training focusing on cancer family history–based risk assessment, lifestyle recommendations, and genetic evaluation and testing. The curriculum was based on an integrated theoretical framework, the National Comprehensive Cancer Network guidelines, the community health worker core competencies, and the 4MAT instructional model. The Texas Department of State Health Services approved and certified the curriculum with 2 delivery formats: in-person/face-to-face workshops and online training. A total of 34 community health workers completed the pilot training in person (n=17) and online (n=17) in 2018 and 2019. Participating community health workers’ knowledge, attitudes, self-efficacy, and intention in delivering basic cancer family history–based genomics education and services significantly increased on the immediate post-test measures compared with their pretest data. Positive ratings and feedback were also reported by the community health workers. Findings from this pilot study suggest that wider training is warranted for educating more community health workers in the U.S.