The cost of providing a community-based model of care to people with spinal cord injury, and the healthcare costs and economic burden to households of spinal cord injury in Bangladesh

• Published in: Spinal cord 2021-08, Vol.59 (8), p.833-841
• Main Authors: Islam, Md. Shofiqul, Harvey, Lisa A., Hossain, Mohammad Sohrab, Rahman, Md. Akhlasur, Costa, Punam D., Liu, Hueiming, Muldoon, Stephen, Taylor, Valerie, Billot, Laurent, Lindley, Richard I., Biering-Sorensen, Fin, Cameron, Ian D., Jan, Stephen
• Format: Article
• Language: English
• Subjects: 692/308; 692/700/478; Aftercare; Anatomy; Bangladesh - epidemiology; Biomedical and Life Sciences; Biomedicine; Cost of Illness; Costs; Expenditures; Health care; Health Care Costs; Households; Human Physiology; Humans; Illnesses; Neurochemistry; Neuropsychology; Neurosciences; Patient Discharge; Poverty; Spinal cord injuries; Spinal Cord Injuries - epidemiology; Spinal Cord Injuries - therapy
• ISSN: 1362-4393; 1476-5624
• DOI: 10.1038/s41393-020-00600-6

Design Descriptive. Setting Community, Bangladesh. Objectives To determine the costs associated with providing a community-based model of care delivered as part of the CIVIC trial to people discharged from hospital with recent spinal cord injury (SCI), and to determine the economic burden to households. Methods Records were kept of the costs of providing a community-based model of care to participants of the CIVIC trial. Data were also collected at discharge and 2 years post discharge to capture out-of-pocket healthcare costs over the preceding 2 years, and the number of participants suffering catastrophic health expenditure and illness-induced poverty. Results The mean cost of providing the community-based model of care to participants assigned to the intervention group ( n  = 204) was US$237 per participant. The mean out-of-pocket healthcare cost over the first 2 years post discharge was US$472 per participant ( n  = 410), and US$448 per control participant ( n  = 206). Median (IQR) equivalent annual household incomes prior to SCI and at 2 years post discharge were US$721 (US$452–1129) and US$464 (US$214–799), respectively. Of the 378 participants alive at 2 years, 324 (86%) had catastrophic health expenditure, and 161 of 212 participants who were not in poverty prior to injury (76%) were pushed into illness-induced poverty within 2 years of injury. Conclusion The cost of providing community-based support to people with SCI for 2 years post discharge in Bangladesh is relatively inexpensive but an overwhelming majority of households rapidly experience financial catastrophe, and most fall into poverty.