Evaluation of an ankylosing spondylitis education and self‐management program: Beneficial effects on ankylosing spondylitis specific outcomes

Background Self‐management programs have demonstrated significant health benefits in people with musculoskeletal diseases. Aim To examine the benefits of a tailored ankylosing spondylitis self‐management program (ASSMP) delivered by trained health professionals for people with ankylosing spondylitis...

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Bibliographic Details
Published in:International journal of rheumatic diseases 2021-03, Vol.24 (3), p.434-444
Main Authors: Inderjeeth, Charles A., Boland, Emma, Connor, Clara, Johnson, Christina, Jacques, Angela, McQuade, Jean
Format: Article
Language:English
Subjects:
Ankylosing spondylitis
Anxiety
Disease
education
Fatigue
Medical personnel
Musculoskeletal diseases
Pain
Quality control
Quality of life
Questionnaires
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Summary:Background Self‐management programs have demonstrated significant health benefits in people with musculoskeletal diseases. Aim To examine the benefits of a tailored ankylosing spondylitis self‐management program (ASSMP) delivered by trained health professionals for people with ankylosing spondylitis (AS) relative to health status, quality of life and disease activity. Methods ASSMP was developed within a continuous quality improvement framework following a needs assessment and focus group discussions. Formal feedback from the group after each 6 week program cycle group by questionnaire helped refine the ASSMP. Patient health status, quality of life and disease activity were assessed at multiple time points up to 12 months. Results Fifty‐five percent were female; mean age 48.5 ± 15.2 years. Median time to AS diagnosis was 4 years (interquartile range: 1‐10). AS disease activity Bath Ankylosing Spondylitis Global Score scores improved at 3, 6 and 12 months (P 
ISSN:1756-1841
1756-185X
DOI:10.1111/1756-185X.14070