Effect of the type of specialized nutrition support on the course of the patient with amyotrophic lateral sclerosis (ALS). Interhospital registry SCLEDyN

Amyotrophic Lateral Sclerosis (ALS) is a neurodegenerative disease in which specialized nutritional support is essential. The objectives of our study were to describe nutritional support at the beginning of follow-up and its impact on anthropometry and survival. An interhospital registry was created...

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Published in:Endocrinología, diabetes y nutrición. diabetes y nutrición., 2021-12, Vol.68 (10), p.699
Main Authors: López-Gómez, Juan José, Ballesteros-Pomar, María D, Gómez-Hoyos, Emilia, Pintor de la Maza, Begoña, Penacho-Lázaro, M Ángeles, Palacio-Mures, Jose María, Abreu-Padín, Cristina, Sanz Gallego, Irene, de Luis-Román, Daniel A
Format: Article
Language:eng ; spa
Subjects:
Amyotrophic Lateral Sclerosis - therapy
Gastrostomy
Humans
Neurodegenerative Diseases
Nutritional Support
Registries
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Summary:Amyotrophic Lateral Sclerosis (ALS) is a neurodegenerative disease in which specialized nutritional support is essential. The objectives of our study were to describe nutritional support at the beginning of follow-up and its impact on anthropometry and survival. An interhospital registry was created for the hospitals of Castilla-León through a web platform designed for this purpose. An anamnesis was carried out on the evolution and nutritional history of the disease; and classical anthropometry was determined. The prescribed nutritional treatment was recorded. The parameters were measured at the beginning, at six and twelve months of nutritional follow-up. A total of 93 patients [49 (52.7%) spinal; 44 (47.3%) bulbar)] were analyzed. The nutritional support route at the beginning was oral diet in 36 (38.7%) patients; oral nutritional supplementation (SON) in 46 (49.5%) patients; and in 11 (11.8%) patients percutaneous endoscopic gastrostomy (PEG). A decrease in the body mass index (BMI) was observed between the first and second visit [Start: 24.18 (3.29) kg/m ; 6 months: 23.69 (4.12) kg/m ; P 
ISSN:2530-0180
DOI:10.1016/j.endinu.2021.01.010