The Pediatric Palliative Improvement Network: A national Healthcare Learning Collaborative

• Published in: Journal of pain and symptom management 2022-01, Vol.63 (1), p.131-139
• Main Authors: Thienprayoon, Rachel, Jones, Emma, Humphrey, Lisa, Ragsdale, Lindsay, Williams, Conrad, Klick, Jeffrey C
• Format: Article
• Language: English
• Subjects: Child; Collaboration; collaborative; Collaborative learning; COVID-19; Delivery of Health Care; Feasibility; Health care; healthcare learning network; Humans; Infrastructure; Measurement; Pain; Palliative Care; pediatric hospice care; Pediatric palliative care; Pediatrics; quality; Quality Improvement; Quality management; Quality of care; SARS-CoV-2; Workshops
• ISSN: 0885-3924; 1873-6513
• DOI: 10.1016/j.jpainsymman.2021.06.020

Although multiple national organizations have created consensus guidelines and metrics for pediatric palliative care (PPC), standardized implementation and measurement has been challenging. In 2016, 6 PPC physician-experts in program development and quality improvement (QI) formed a healthcare learning collaborative network entitled the Pediatric Palliative Improvement Network (PPIN). The primary drivers identified were 1) Feasibility of a national learning network demonstrated through the completion of one small QI project, 2) Standard education in QI methodology and 3) Salient pediatric palliative care operational, clinical and satisfaction metrics clearly defined. PPIN now includes146 members representing 51 organizations. In 2019 the group completed a national collaborative QI project focused on pain assessment at the time of initial consult, demonstrating a national increase in pain assessment from 75.8% to >90% over 12 months. PPIN has hosted two national QI workshops training more than 50 PPC clinicians in QI, with a 2-hour webinar provided in 2020 due to COVID. Monthly calls since 2017 provide QI methods “refreshers”, share local works in progress, and provide infrastructure for future collaborative projects. PPIN has become a sustainable organization which improves the quality of PPC through focus on national QI methods training, successful collaborative projects, and the creation of a learning and peer support community with regular calls. With the advent of the Palliative Care Quality Collaborative in 2020, PPIN provides critical educational and organizational infrastructure to inform ongoing quality efforts in PPC, now and in the future.