Choose your Own Adventure: Pathways to Adulthood Autism Diagnosis in Australia

Pathways to diagnosis in adulthood are poorly understood. Even less is known about undiagnosed adults who believe they may be autistic. This mixed-methods online survey examined adults’ journeys from initial concern to receiving the diagnosis. Quantitative findings showed the diagnostic process to b...

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Bibliographic Details
Published in:Journal of autism and developmental disorders 2022-07, Vol.52 (7), p.2984-2996
Main Authors: Huang, Yunhe, Arnold, Samuel R. C., Foley, Kitty-Rose, Trollor, Julian N.
Format: Article
Language:English
Subjects:
Adults
Autism
Behavioral Science and Psychology
Child and School Psychology
Clinical Diagnosis
Diagnosis
Emotional responses
Foreign Countries
Likert scale
Medical diagnosis
Mixed methods research
National guidelines
Neurosciences
Original Paper
Pediatrics
Pervasive Developmental Disorders
Psychology
Public Health
Qualitative research
Undiagnosed
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Summary:Pathways to diagnosis in adulthood are poorly understood. Even less is known about undiagnosed adults who believe they may be autistic. This mixed-methods online survey examined adults’ journeys from initial concern to receiving the diagnosis. Quantitative findings showed the diagnostic process to be highly heterogeneous. Qualitative analysis identified desires for explanation and support as motives for seeking diagnosis. Cost and fear of not being taken seriously were major barriers, echoed by qualitative responses that described the process as confusing, expensive and time-consuming. While most participants were satisfied with the diagnosis, their emotional reactions were complex. Findings support the need for thoroughly implementing national guidelines, and for improved knowledge and communication in mainstream clinicians encountering clients with possible autism characteristics.
ISSN:0162-3257
1573-3432
DOI:10.1007/s10803-021-05169-4