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Predictors of family impact of juvenile localized scleroderma
Objective To measure the impact juvenile localized scleroderma (jLS) has on family quality of life and to identify predictors of family impact in this population which may inform the development of tailored resources to enhance family functioning for patients with jLS. Methods A retrospective cohort...
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Published in: | Pediatric dermatology 2021-09, Vol.38 (5), p.1137-1142 |
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Main Authors: | , , , , , |
Format: | Article |
Language: | English |
Subjects: | |
Citations: | Items that this one cites Items that cite this one |
Online Access: | Get full text |
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Summary: | Objective
To measure the impact juvenile localized scleroderma (jLS) has on family quality of life and to identify predictors of family impact in this population which may inform the development of tailored resources to enhance family functioning for patients with jLS.
Methods
A retrospective cohort study of pediatric patients with jLS and their families was conducted. Five questionnaires were administered at each visit: Pediatric Quality of Life Inventory Family Impact Module (PedsQL‐FIM), PedsQL 4.0 Generic Core Scales (PedsQL‐Generic), PedsQL Rheumatology Module (PedsQL‐RM), Child Health Assessment Questionnaire (CHAQ), and Children's Dermatology Life Quality Index (CDLQI). Linear mixed models with random intercepts for each patient were used to find relationships between family impact scores and clinically relevant variables over time. Variables of interest included disease activity status, methotrexate use, jLS distribution, and scores for PedsQL‐Generic and PedsQL‐RM.
Results
The median baseline PedsQL‐FIM total score was 80.9 (IQR = 76.6‐97.4). Adjusting for age and sex, the most significant predictors of family impact were PedsQL‐Generic scores and four of five PedsQL‐RM dimensions (all P |
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ISSN: | 0736-8046 1525-1470 |
DOI: | 10.1111/pde.14683 |