Health perception by young adults born very preterm

• Published in: Acta Paediatrica 2021-11, Vol.110 (11), p.3021-3029
• Main Authors: Girard‐Bock, Camille, Flahault, Adrien, Bernard, Élisabeth, Bourque, Claude Julie, Fallaha, Catherine, Cloutier, Anik, Janvier, Annie, Nuyt, Anne Monique, Luu, Thuy Mai
• Format: Article
• Language: English
• Subjects: Health care; healthcare use; health‐related quality of life; outcome research; patient perspectives; Perception; prematurity; Public health; Young adults
• ISSN: 0803-5253; 1651-2227
• DOI: 10.1111/apa.16056

Aim This study assessed the self‐reported health perception and use of health care by adults born very preterm before 30 weeks of gestation. Methods The participants were part of a cross‐sectional observational study that assessed the global health of young adults aged 18–29 years born very preterm in Quebec, Canada. Health perception was explored from 2011 to 2016 using the second Short‐Form 36 Health Survey (SF‐36v2), and objective health measures were obtained. Further in‐depth open‐ended questions were asked in 2018. Results The 101 preterm subjects had similar perceptions of their health to 105 term‐born controls, according to the SF‐36v2, despite significantly more adverse health conditions. Their healthcare use was similar. However, the later in‐depth questionnaire showed that 23% of 45 preterm subjects and 3% of 34 term‐born subjects perceived their health as poorer than the general population. Major factors that could improve their respective health were lifestyle habits (74% vs. 81%) and eliminating specific adverse symptoms (52% vs. 27%). Only 10% of preterm individuals had been asked about their perinatal history by physicians. Conclusion Adults born very preterm said their health was poorer than the general population and identified specific factors that should be addressed during routine health monitoring.