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Availability as key determinant in the palliative home care setting from the patients’ and family caregivers’ perspectives: A quantitative-qualitative-content analysis approach
A sense of security is important in palliative home care. Yet, knowledge about which components contribute most to feeling secure from the patients' and family caregivers' perspectives, especially since the introduction of specialist palliative home care, is sparse. The goal of the current...
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Published in: | Palliative & supportive care 2021-10, Vol.19 (5), p.570-579 |
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creator | Dillen, Kim Joshi, Melanie Krumm, Norbert Hesse, Michaela Brunsch, Holger Schmidt, Holger Strupp, Julia Radbruch, Lukas Rolke, Roman Voltz, Raymond |
description | A sense of security is important in palliative home care. Yet, knowledge about which components contribute most to feeling secure from the patients' and family caregivers' perspectives, especially since the introduction of specialist palliative home care, is sparse. The goal of the current study was to determine the key components contributing to a sense of security and how they relate to each other as experienced by patients and family caregivers in specialist and generalist palliative home care.
The current sub-study, as part of a larger study, was performed in different regions in Germany. Palliative care patients and family caregivers of at least 18 years of age, being cared for at home were interviewed using semi-structured interview guides following a three-factor model and analyzed by using a combined quantitative-qualitative-content approach.
One hundred and ninty-seven patients and 10 carers completed interviews between December 2017 and April 2019. The majority of patients were diagnosed with an oncological disease. Sense of security was mentioned particularly often suggesting its high relevance. We identified nine subcategories that were all mentioned more frequently by specialist than generalist palliative home care recipients in the following order of priority and relation: (i) patient-centeredness: availability, provision of information/education, professional competence, patient empowerment, and trust (ii) organizational work: comprehensive responsibility, external collaboration, and internal cooperation, and (iii) direct communication.
The work of specialist palliative home care services in particular was perceived as very effective and beneficial. Our findings confirm a previously developed three-factor model allowing for generalizability and revealed that availability was most important for improving the sense of security for effective palliative home care. |
doi_str_mv | 10.1017/S147895152000125X |
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The current sub-study, as part of a larger study, was performed in different regions in Germany. Palliative care patients and family caregivers of at least 18 years of age, being cared for at home were interviewed using semi-structured interview guides following a three-factor model and analyzed by using a combined quantitative-qualitative-content approach.
One hundred and ninty-seven patients and 10 carers completed interviews between December 2017 and April 2019. The majority of patients were diagnosed with an oncological disease. Sense of security was mentioned particularly often suggesting its high relevance. We identified nine subcategories that were all mentioned more frequently by specialist than generalist palliative home care recipients in the following order of priority and relation: (i) patient-centeredness: availability, provision of information/education, professional competence, patient empowerment, and trust (ii) organizational work: comprehensive responsibility, external collaboration, and internal cooperation, and (iii) direct communication.
The work of specialist palliative home care services in particular was perceived as very effective and beneficial. Our findings confirm a previously developed three-factor model allowing for generalizability and revealed that availability was most important for improving the sense of security for effective palliative home care.</description><identifier>ISSN: 1478-9515</identifier><identifier>EISSN: 1478-9523</identifier><identifier>DOI: 10.1017/S147895152000125X</identifier><identifier>PMID: 34676810</identifier><language>eng</language><publisher>New York, USA: Cambridge University Press</publisher><subject>Caregivers ; Family physicians ; Home Care Services ; Home environment ; Home health care ; Humans ; Informed consent ; Interviews ; Neoplasms ; Original Article ; Palliative Care ; Patients ; Qualitative Research ; Teams</subject><ispartof>Palliative & supportive care, 2021-10, Vol.19 (5), p.570-579</ispartof><rights>Copyright © The Author(s), 2020. Published by Cambridge University Press</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c373t-d0d25e1b28531ca9aaa587356a8016c7eb85e92b6434f3e0b6e13ee04b27260e3</citedby><cites>FETCH-LOGICAL-c373t-d0d25e1b28531ca9aaa587356a8016c7eb85e92b6434f3e0b6e13ee04b27260e3</cites><orcidid>0000-0002-0270-3338</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://www.cambridge.org/core/product/identifier/S147895152000125X/type/journal_article$$EHTML$$P50$$Gcambridge$$H</linktohtml><link.rule.ids>314,780,784,27922,27923,72730</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/34676810$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Dillen, Kim</creatorcontrib><creatorcontrib>Joshi, Melanie</creatorcontrib><creatorcontrib>Krumm, Norbert</creatorcontrib><creatorcontrib>Hesse, Michaela</creatorcontrib><creatorcontrib>Brunsch, Holger</creatorcontrib><creatorcontrib>Schmidt, Holger</creatorcontrib><creatorcontrib>Strupp, Julia</creatorcontrib><creatorcontrib>Radbruch, Lukas</creatorcontrib><creatorcontrib>Rolke, Roman</creatorcontrib><creatorcontrib>Voltz, Raymond</creatorcontrib><creatorcontrib>APVEL Consortium</creatorcontrib><title>Availability as key determinant in the palliative home care setting from the patients’ and family caregivers’ perspectives: A quantitative-qualitative-content analysis approach</title><title>Palliative & supportive care</title><addtitle>Pall Supp Care</addtitle><description>A sense of security is important in palliative home care. Yet, knowledge about which components contribute most to feeling secure from the patients' and family caregivers' perspectives, especially since the introduction of specialist palliative home care, is sparse. The goal of the current study was to determine the key components contributing to a sense of security and how they relate to each other as experienced by patients and family caregivers in specialist and generalist palliative home care.
The current sub-study, as part of a larger study, was performed in different regions in Germany. Palliative care patients and family caregivers of at least 18 years of age, being cared for at home were interviewed using semi-structured interview guides following a three-factor model and analyzed by using a combined quantitative-qualitative-content approach.
One hundred and ninty-seven patients and 10 carers completed interviews between December 2017 and April 2019. The majority of patients were diagnosed with an oncological disease. Sense of security was mentioned particularly often suggesting its high relevance. We identified nine subcategories that were all mentioned more frequently by specialist than generalist palliative home care recipients in the following order of priority and relation: (i) patient-centeredness: availability, provision of information/education, professional competence, patient empowerment, and trust (ii) organizational work: comprehensive responsibility, external collaboration, and internal cooperation, and (iii) direct communication.
The work of specialist palliative home care services in particular was perceived as very effective and beneficial. 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Yet, knowledge about which components contribute most to feeling secure from the patients' and family caregivers' perspectives, especially since the introduction of specialist palliative home care, is sparse. The goal of the current study was to determine the key components contributing to a sense of security and how they relate to each other as experienced by patients and family caregivers in specialist and generalist palliative home care.
The current sub-study, as part of a larger study, was performed in different regions in Germany. Palliative care patients and family caregivers of at least 18 years of age, being cared for at home were interviewed using semi-structured interview guides following a three-factor model and analyzed by using a combined quantitative-qualitative-content approach.
One hundred and ninty-seven patients and 10 carers completed interviews between December 2017 and April 2019. The majority of patients were diagnosed with an oncological disease. Sense of security was mentioned particularly often suggesting its high relevance. We identified nine subcategories that were all mentioned more frequently by specialist than generalist palliative home care recipients in the following order of priority and relation: (i) patient-centeredness: availability, provision of information/education, professional competence, patient empowerment, and trust (ii) organizational work: comprehensive responsibility, external collaboration, and internal cooperation, and (iii) direct communication.
The work of specialist palliative home care services in particular was perceived as very effective and beneficial. Our findings confirm a previously developed three-factor model allowing for generalizability and revealed that availability was most important for improving the sense of security for effective palliative home care.</abstract><cop>New York, USA</cop><pub>Cambridge University Press</pub><pmid>34676810</pmid><doi>10.1017/S147895152000125X</doi><tpages>10</tpages><orcidid>https://orcid.org/0000-0002-0270-3338</orcidid></addata></record> |
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subjects | Caregivers Family physicians Home Care Services Home environment Home health care Humans Informed consent Interviews Neoplasms Original Article Palliative Care Patients Qualitative Research Teams |
title | Availability as key determinant in the palliative home care setting from the patients’ and family caregivers’ perspectives: A quantitative-qualitative-content analysis approach |
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