Siblings of children with a complex chronic disorder treated by non‐invasive ventilation

• Published in: Journal of paediatrics and child health 2022-05, Vol.58 (5), p.842-847
• Main Authors: Théron, Nicolas, Khirani, Sonia, Amaddeo, Alessandro, Griffon, Lucie, Touil, Samira, Ouss, Lisa, Fauroux, Brigitte
• Format: Article
• Language: English
• Subjects: Adolescent; Child; Child & adolescent psychiatry; Child, Preschool; Children with disabilities; Chronic Disease; Chronic illnesses; Family; Female; Humans; Infant; Male; Noninvasive Ventilation; non‐invasive ventilation; Oxygen therapy; Parents - psychology; Pediatrics; questionnaire; sibling; Siblings; Siblings - psychology; sleep‐disordered breathing; Ventilation
• ISSN: 1034-4810; 1440-1754
• DOI: 10.1111/jpc.15856

Aim The aim of the study was to assess the emotional and behavioural functioning of siblings of children treated with long term non‐invasive ventilation (NIV). Methods Parents of children treated with NIV completed the Child Behaviour Checklist and a qualitative questionnaire for each sibling, aged 1.5–18 years old. Results The parents of 49 ventilated children were questioned about 79 siblings. For the siblings aged 1.5–5, mean total T score was 57 ± 22 (range 28–92), and five siblings (31%) were in the clinical range. For the siblings aged 6–18, mean total T score was 49 ± 12 (range 26–71), and six siblings (10%) were in the clinical range. Siblings felt responsible for their affected sibling (31%) and involved with his/her illness (52%), with 31% being worried about him/her. A change in behaviour was observed in 19% of the siblings since the initiation of NIV; 26% were impacted by the use of the NIV device. Conclusions The majority of siblings of children treated with NIV do not present significant emotional and behavioural problems. They feel deeply responsible for their affected sibling and involved in his/her illness and treatment, highlighting the importance to involve the siblings in the care of the affected child.