Parental Perceptions of Autism Spectrum Disorder in Latinx and Black Sociocultural Contexts: A Systematic Review

Parents of children with autism spectrum disorder (ASD) face challenges in accessing diagnostic and treatment services; these challenges vary by race, ethnicity, and culture. This systematic review examines parental perceptions of ASD within Latinx and Black American communities. Findings indicate t...

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Bibliographic Details
Published in:American journal on intellectual and developmental disabilities 2022-01, Vol.127 (1), p.42-63
Main Authors: Rivera-Figueroa, Karla, Marfo, Nana Yaa A, Eigsti, Inge-Marie
Format: Article
Language:English
Subjects:
Access to Information
African Americans
Autism
Autism Spectrum Disorder - therapy
Autism Spectrum Disorders
Autistic children
Barriers
Caregivers
Child
Children
Children & youth
Clinical Diagnosis
Clinical medicine
Community
Community Relations
Coping
Correlation
Cultural Influences
Disproportionate Representation
Doctoral Dissertations
Ethnic groups
Ethnicity
Etiology
Families & family life
Family (Sociological Unit)
Family Relationship
Gender
Health disparities
Health Services
Healthcare Disparities
Hispanic Americans
Humans
Interconnections
Knowledge Level
Medical diagnosis
Meta Analysis
Minority Groups
Negative experiences
Parent Attitudes
Parents
Parents & parenting
Perceptions
Pervasive Developmental Disorders
Race
Racial Differences
Religion
Religious cultural groups
Religious Factors
Social Bias
Sociocultural factors
Stigma
Systematic review
Therapy
Vaccines
Values
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Description
Summary:Parents of children with autism spectrum disorder (ASD) face challenges in accessing diagnostic and treatment services; these challenges vary by race, ethnicity, and culture. This systematic review examines parental perceptions of ASD within Latinx and Black American communities. Findings indicate that interconnections with family and religious groups promoted positive coping and describe positive impacts of having a child with ASD. Relative to White families, community members reported reduced access to information and more inaccurate beliefs about ASD, higher levels of ASD-related stigma, and more negative experiences with healthcare providers, which serve to exacerbate healthcare disparities. Conclusions are limited by an underrepresentation of minority groups in research. We call for efforts to address the specific needs of racial and ethnic minorities.
ISSN:1944-7515
1944-7558
DOI:10.1352/1944-7558-127.1.42