Analysis of the 2000 to 2018 autism and developmental disabilities monitoring network surveillance reports: Implications for primary care clinicians

• Published in: Journal of pediatric nursing 2022-07, Vol.65, p.55-68
• Main Authors: Kilmer, Michele, Boykin, Allison Ames
• Format: Article
• Language: English
• Subjects: Autism and developmental disabilities monitoring; Diagnostic practices; Pediatric autism; Primary care clinicians
• ISSN: 0882-5963; 1532-8449
• DOI: 10.1016/j.pedn.2022.04.014

Autism Spectrum Disorder (ASD), with the current prevalence at one in 44 children, is the most rapidly escalating neurodevelopmental disorder in the United States. While the 2000 to 2018 Autism and Developmental Disabilities Monitoring (ADDM) Network reports indicate progress toward identifying children with ASD by age 24 months, the actual age at which most children receive a diagnosis, ranging between age 51 to 53 months, has not significantly changed since 2000. Racial and gender disparities further complicate ASD identification. This article explores past ADDM findings to highlight ASD identification practices and provide relevant care management recommendations for primary care clinicians. Armed with this information, clinicians can improve ASD identification in their practice and advocate for beneficial, evidence-based health policies that decrease known disparities and enhance ASD care management for all.