YouTube as a source of information on systemic sclerosis

Aim YouTube is a popular online platform which patients and healthcare professionals often use to obtain information. However, the reliability and quality of videos on systemic sclerosis are not known. Method We searched for the key words “systemic sclerosis” and “scleroderma” on YouTube. Features o...

Full description

Saved in:
Bibliographic Details
Published in:International journal of rheumatic diseases 2022-08, Vol.25 (8), p.887-892
Main Authors: Unal‐Ulutatar, Cagri, Ulutatar, Firat
Format: Article
Language:English
Subjects:
information
Patients
Scleroderma
Systemic sclerosis
video analysis
YouTube
Citations: Items that this one cites
Items that cite this one
Online Access:Get full text
Tags: Add Tag
No Tags, Be the first to tag this record!
Description
Summary:Aim YouTube is a popular online platform which patients and healthcare professionals often use to obtain information. However, the reliability and quality of videos on systemic sclerosis are not known. Method We searched for the key words “systemic sclerosis” and “scleroderma” on YouTube. Features of videos such as the number of views and duration of videos were noted. The reliability and quality of videos were assessed with the modified DISCERN and Global Quality Scale (GQS), respectively. The videos were divided into three categories: useful, misleading and patient experiences. The videos were assessed according to these categories and their quality. Results A total of 200 videos listed by relevance were screened and 115 videos which met the inclusion criteria were analyzed further. Eighty‐four (73%) of the 115 videos were useful, 20 (17.4%) were misleading, and 11 (9.6%) were patients' experiences. Useful videos had higher DISCERN and GQS scores compared to misleading videos and videos that contain patient experiences (P 
ISSN:1756-1841
1756-185X
DOI:10.1111/1756-185X.14363