Trends and Disparities in Health Care Transition Preparation from 2016 to 2019: Findings from the US National Survey of Children's Health

• Published in: The Journal of pediatrics 2022-08, Vol.247, p.95-101
• Main Authors: Javalkar, Karina, Nazareth, Meaghan, Diaz-Gonzalez de Ferris, Maria E.
• Format: Article
• Language: English
• ISSN: 0022-3476; 1097-6833
• DOI: 10.1016/j.jpeds.2022.05.027

To evaluate national trends in health care transition preparation over a 4-year period using the National Survey of Children’s Health (NSCH) and to identify and examine disparities in receipt of health care transition preparation over the study period. Data from the NSCH, an annual serial cross-sectional survey conducted from 2016 to 2019, were examined. Caregivers answered questions regarding one of their children within each of a random sample of households across the US. The primary analysis examined trends in health care transition preparation based on the year of survey completion. A secondary analysis examined the associations of race/ethnicity, primary household language, insurance type, and children with special health care needs (CSHCN) with receipt of health care transition preparation. We included data from 54 434 youths (20 708 in 2016, 8909 in 2017, 12 587 in 2018, and 12 230 in 2019) aged 12-17 years whose caregivers completed the NSCH between 2016 and 2019. The sample was weighted to be nationally representative based on weights provided by the NSCH. The proportion of youths receiving necessary health care transition preparation increased over the study period, from 14.8% in 2016 to 20.5% in 2019 (P