Intersectoral collaboration in home-based end-of-life pediatric cancer care: A qualitative multiple-case study integrating families’ and professionals’ experiences

Background: Many children and adolescents with incurable cancer and their families prefer to receive end-of-life care and to die at home. This implies a transition of care from hospital to home and presupposes the establishment of a well-functioning collaboration between the family and professionals...

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Bibliographic Details
Published in:Palliative medicine 2023-01, Vol.37 (1), p.149-162
Main Authors: Hammer, Nanna Maria, Hansson, Helena, Pedersen, Line Hjøllund, Abitz, Maja, Sjøgren, Per, Schmiegelow, Kjeld, Bidstrup, Pernille Envold, Larsen, Hanne Bækgaard, Olsen, Marianne
Format: Article
Language:English
Subjects:
Adolescent
Bereavement
Cancer
Child
Children
Collaboration
Content analysis
Continuity of care
Death
End of life decisions
Families & family life
Grandparents
Health care
Home based
Home Care Services
Hospice care
Humans
Interagency collaboration
Interdisciplinary aspects
Intersectoral Collaboration
Interviews
Multidisciplinary teams
Neoplasms - therapy
Optimization
Palliative Care
Parents
Pediatrics
Qualitative Research
Teenagers
Terminal Care
Trust
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Summary:Background: Many children and adolescents with incurable cancer and their families prefer to receive end-of-life care and to die at home. This implies a transition of care from hospital to home and presupposes the establishment of a well-functioning collaboration between the family and professionals across health care sectors. Aim: To identify and explore key elements of home-based end-of-life care collaboration for children with cancer, as experienced by their parents and grandparents and the hospital- and community-based professionals involved. Design: Descriptive qualitative multiple-case study. Data were collected by semi-structured interviews and written responses to open-ended questions, and analyzed inductively across cases using qualitative content analysis. Setting/participants: Cases comprised a criterion sample of five children (aged
ISSN:0269-2163
1477-030X
DOI:10.1177/02692163221135350