Caregiver knowledge of obstructive sleep apnoea in Down syndrome

Background Down syndrome (DS) population has a very high prevalence of obstructive sleep apnoea (OSA), but this remains underdiagnosed. Hence, we aimed to evaluate caregiver's knowledge of OSA and related sociodemographic factors that could contribute to OSA screening patterns in this populatio...

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Bibliographic Details
Published in:Journal of intellectual disability research 2023-01, Vol.67 (1), p.77-88
Main Authors: Giménez, S., Tapia, I. E., Fortea, J., Levedowski, D., Osorio, R., Hendrix, J., Hillerstrom, H.
Format: Article
Language:English
Subjects:
Academic achievement
Aging
Between-subjects design
Caregivers
Child
Child, Preschool
Down syndrome
Down Syndrome - complications
Down Syndrome - therapy
Humans
Medical diagnosis
Medical screening
Nerve stimulation
Obstructive sleep apnea
Obstructive sleep apnoea
Online Surveys
Pediatrics
Polls & surveys
Polysomnography
Prevalence
Sleep
Sleep apnea
Sleep Apnea, Obstructive - diagnosis
Sleep Apnea, Obstructive - epidemiology
Sleep Apnea, Obstructive - therapy
Sleep disorders
Sleep studies
Sociodemographics
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Summary:Background Down syndrome (DS) population has a very high prevalence of obstructive sleep apnoea (OSA), but this remains underdiagnosed. Hence, we aimed to evaluate caregiver's knowledge of OSA and related sociodemographic factors that could contribute to OSA screening patterns in this population. Methods An online survey though the LuMind IDSC Foundation focused on OSA diagnosis, treatments and the number of sleep studies performed. Data were compared between subjects born before and after the American Academy of Pediatrics (AAP) recommendations for OSA screening. Results Of the caregivers, 724 (parents 96.3%), responded to the survey. The median [interquartile (IQR)] age of the subjects with DS was 12 [20;7] years. The majority (84.3%) had sleep apnoea diagnosis, and half of them were initially referred for a sleep study due to disturbed sleep symptoms. Only 58.7% of the responders were aware of the AAP recommendations. This was linked to higher socioeconomic and/or educational level and to an earlier OSA diagnosis. The median (IQR) age of OSA diagnosis was lowered after the AAP guidelines publication compared with before its publication (3 [4;2] years vs. 10 [18;5] years, P 
ISSN:0964-2633
1365-2788
DOI:10.1111/jir.12990