Activity and participation in haemophiliacs: Item response modelling based on international classification of functioning, disability and health

Background and objectives There is scant research investigating the user‐friendly functional assessment tool conceptualized by the International Classification of Functioning, Disability and Health (ICF) among persons with haemophilia (PWH). This study aims to accomplish two goals: (1) quantifying c...

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Published in:Haemophilia : the official journal of the World Federation of Hemophilia 2023-01, Vol.29 (1), p.308-316
Main Authors: Feng, Chun, Geng, Bao‐Feng, Liu, Shou‐Guo, Jiang, Zhong‐Li, Lin, Feng
Format: Article
Language:English
Subjects:
Adult
Classification
Cross-Sectional Studies
Disability Evaluation
haemophilia
Hemophilia
Hemophilia A
Humans
International Classification of Functioning, Disability and Health
International classification of functioning, disability and health (ICF)
Item response theory
Item Response Theory (IRT)
outcome measures
Rasch model
Reproducibility of Results
Young Adult
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cited_by cdi_FETCH-LOGICAL-c3532-ef26d3491b77d1e3adc6b58d5a3c95dc91c33fbc3f2e0972743d4195ea7025dd3
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container_title Haemophilia : the official journal of the World Federation of Hemophilia
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creator Feng, Chun
Geng, Bao‐Feng
Liu, Shou‐Guo
Jiang, Zhong‐Li
Lin, Feng
description Background and objectives There is scant research investigating the user‐friendly functional assessment tool conceptualized by the International Classification of Functioning, Disability and Health (ICF) among persons with haemophilia (PWH). This study aims to accomplish two goals: (1) quantifying comprehensive functioning measures of haemophilia through Item Response Theory (IRT); (2) discussing patient‐centred care based on the Wright map of personal ability and item difficulty. Methods A cross‐sectional study was carried out in 70 PWH (mean age, 33.09 ± 11.04) via convenience sampling. All patients completed the 45 ICF categories of haemophilic‐specific activity and participation. Psychometric properties of the categories were examined using Mokken scale analysis and parametric item response modelling. Results We extracted a unidimensional scale with 31 categories, and constructed a Rasch model with good fitness. The Cronbach's α of the scale was .9713, with the Guttman's λ2 = .9730, Molenaar Sijtsma ρ = .9802, and latent class reliability coefficient = .9769, indicating great internal reliability. The estimated individual social competence by the Rasch model was highly related to the index score of the three‐level EuroQol five‐dimensional questionnaire (EQ‐5D‐3L) (p 
doi_str_mv 10.1111/hae.14702
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This study aims to accomplish two goals: (1) quantifying comprehensive functioning measures of haemophilia through Item Response Theory (IRT); (2) discussing patient‐centred care based on the Wright map of personal ability and item difficulty. Methods A cross‐sectional study was carried out in 70 PWH (mean age, 33.09 ± 11.04) via convenience sampling. All patients completed the 45 ICF categories of haemophilic‐specific activity and participation. Psychometric properties of the categories were examined using Mokken scale analysis and parametric item response modelling. Results We extracted a unidimensional scale with 31 categories, and constructed a Rasch model with good fitness. The Cronbach's α of the scale was .9713, with the Guttman's λ2 = .9730, Molenaar Sijtsma ρ = .9802, and latent class reliability coefficient = .9769, indicating great internal reliability. The estimated individual social competence by the Rasch model was highly related to the index score of the three‐level EuroQol five‐dimensional questionnaire (EQ‐5D‐3L) (p &lt; .001, r = .62), and had a moderate correlation (p &lt; .001, r = .54) with the score of Haemophilia Activities List (HAL). Conclusions The ICF scale of haemophilic activity and participation with 31 categories (HAPPY‐ICF) has good construct validity and internal consistency. The person‐item threshold distribution map might be helpful in research and clinical practices for patient‐oriented care.</description><identifier>ISSN: 1351-8216</identifier><identifier>EISSN: 1365-2516</identifier><identifier>DOI: 10.1111/hae.14702</identifier><identifier>PMID: 36424822</identifier><language>eng</language><publisher>England: Wiley Subscription Services, Inc</publisher><subject>Adult ; Classification ; Cross-Sectional Studies ; Disability Evaluation ; haemophilia ; Hemophilia ; Hemophilia A ; Humans ; International Classification of Functioning, Disability and Health ; International classification of functioning, disability and health (ICF) ; Item response theory ; Item Response Theory (IRT) ; outcome measures ; Rasch model ; Reproducibility of Results ; Young Adult</subject><ispartof>Haemophilia : the official journal of the World Federation of Hemophilia, 2023-01, Vol.29 (1), p.308-316</ispartof><rights>2022 John Wiley &amp; Sons Ltd.</rights><rights>2023 John Wiley &amp; Sons Ltd.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3532-ef26d3491b77d1e3adc6b58d5a3c95dc91c33fbc3f2e0972743d4195ea7025dd3</citedby><cites>FETCH-LOGICAL-c3532-ef26d3491b77d1e3adc6b58d5a3c95dc91c33fbc3f2e0972743d4195ea7025dd3</cites><orcidid>0000-0002-9133-7500 ; 0000-0003-3067-7146</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,780,784,27924,27925</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/36424822$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Feng, Chun</creatorcontrib><creatorcontrib>Geng, Bao‐Feng</creatorcontrib><creatorcontrib>Liu, Shou‐Guo</creatorcontrib><creatorcontrib>Jiang, Zhong‐Li</creatorcontrib><creatorcontrib>Lin, Feng</creatorcontrib><title>Activity and participation in haemophiliacs: Item response modelling based on international classification of functioning, disability and health</title><title>Haemophilia : the official journal of the World Federation of Hemophilia</title><addtitle>Haemophilia</addtitle><description>Background and objectives There is scant research investigating the user‐friendly functional assessment tool conceptualized by the International Classification of Functioning, Disability and Health (ICF) among persons with haemophilia (PWH). This study aims to accomplish two goals: (1) quantifying comprehensive functioning measures of haemophilia through Item Response Theory (IRT); (2) discussing patient‐centred care based on the Wright map of personal ability and item difficulty. Methods A cross‐sectional study was carried out in 70 PWH (mean age, 33.09 ± 11.04) via convenience sampling. All patients completed the 45 ICF categories of haemophilic‐specific activity and participation. Psychometric properties of the categories were examined using Mokken scale analysis and parametric item response modelling. Results We extracted a unidimensional scale with 31 categories, and constructed a Rasch model with good fitness. The Cronbach's α of the scale was .9713, with the Guttman's λ2 = .9730, Molenaar Sijtsma ρ = .9802, and latent class reliability coefficient = .9769, indicating great internal reliability. The estimated individual social competence by the Rasch model was highly related to the index score of the three‐level EuroQol five‐dimensional questionnaire (EQ‐5D‐3L) (p &lt; .001, r = .62), and had a moderate correlation (p &lt; .001, r = .54) with the score of Haemophilia Activities List (HAL). Conclusions The ICF scale of haemophilic activity and participation with 31 categories (HAPPY‐ICF) has good construct validity and internal consistency. 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This study aims to accomplish two goals: (1) quantifying comprehensive functioning measures of haemophilia through Item Response Theory (IRT); (2) discussing patient‐centred care based on the Wright map of personal ability and item difficulty. Methods A cross‐sectional study was carried out in 70 PWH (mean age, 33.09 ± 11.04) via convenience sampling. All patients completed the 45 ICF categories of haemophilic‐specific activity and participation. Psychometric properties of the categories were examined using Mokken scale analysis and parametric item response modelling. Results We extracted a unidimensional scale with 31 categories, and constructed a Rasch model with good fitness. The Cronbach's α of the scale was .9713, with the Guttman's λ2 = .9730, Molenaar Sijtsma ρ = .9802, and latent class reliability coefficient = .9769, indicating great internal reliability. 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source Wiley-Blackwell Read & Publish Collection
subjects Adult
Classification
Cross-Sectional Studies
Disability Evaluation
haemophilia
Hemophilia
Hemophilia A
Humans
International Classification of Functioning, Disability and Health
International classification of functioning, disability and health (ICF)
Item response theory
Item Response Theory (IRT)
outcome measures
Rasch model
Reproducibility of Results
Young Adult
title Activity and participation in haemophiliacs: Item response modelling based on international classification of functioning, disability and health
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