A scoping review of family-centered interventions in dementia care

• Published in: Dementia (London, England) England), 2023-02, Vol.22 (2), p.405-438
• Main Authors: Ramachandran, Meena, Bangera, Kshama, Anita Dsouza, Sebestina, Belchior, Patricia
• Format: Article
• Language: English
• Subjects: Dementia - therapy; Humans; Occupational Therapy
• ISSN: 1471-3012; 1741-2684
• DOI: 10.1177/14713012221144485

Families of persons living with dementia provide varying levels and forms of support to their loved ones and experience changes in familial dynamics, roles, and responsibilities over time. Family-centered care can enable their successful adaptation and participation in meaningful occupations. This scoping review aimed to explore available familycentered interventions for persons living with dementia, with a focus on occupational therapy. Three databases were searched and 31 eligible studies were found. Thirteen family-centered interventions were identified that were mostly multicomponent in nature, of which three involved occupational therapy. These interventions were investigated using a range of study designs and addressed outcomes related to the person with dementia, primary caregiver, and extended social network. With respect to study context, most interventions were developed in the United States and other Western countries with a limited number located in other contexts. The review findings underline the need for developing more family-centered interventions within occupational therapy, particularly for different contexts and cultures, and for translating available interventions to practice.