Born in the UK: A registry to improve and broadcast knowledge on Waldenström macroglobulinaemia

Registries constitute an interesting source of real‐world data and bring complementary information to randomised controlled trials. They are of particular importance in rare diseases such as Waldenström macroglobulinaemia (WM), which can present with various clinical and biological features. In thei...

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Bibliographic Details
Published in:British journal of haematology 2023-06, Vol.201 (5), p.809-810
Main Authors: Durot, Eric, Delmer, Alain
Format: Article
Language:English
Subjects:
Clinical trials
Hematology
Humans
IgM‐related disorder
Immunoglobulin M
real‐world data
Registries
registry
United Kingdom - epidemiology
Waldenstrom Macroglobulinemia - drug therapy
Waldenström macroglobulinaemia
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Summary:Registries constitute an interesting source of real‐world data and bring complementary information to randomised controlled trials. They are of particular importance in rare diseases such as Waldenström macroglobulinaemia (WM), which can present with various clinical and biological features. In their paper Uppal and colleagues describe the development of the Rory Morrison Registry, the UK registry for WM and IgM‐related disorders and highlight the profound changes in therapies both at first‐line and relapsed settings in the recent years. Commentary on: Uppal E. et al. The WMUK Rory Morrison Registry for Waldenström Macroglobulinaemia: the growth of a national registry for a rare disorder. Br J Haematol. 2023;201:905‐912.
ISSN:0007-1048
1365-2141
DOI:10.1111/bjh.18695