Electronic medical records driven big data analytics in retinal diseases, report number 1: non-oncological retinal diseases in children and adolescents in India

• Published in: International ophthalmology 2023-08, Vol.43 (8), p.2833-2839
• Main Authors: Agarwal, Komal, Das, Anthony Vipin, Padhi, Tapas Ranjan, Jayanna, Sushma, Panchal, Bhavik, Nayak, Sameera, Das, Taraprasad, Jalali, Subhadra
• Format: Article
• Language: English
• Subjects: Adolescent; Adolescents; Age; Age composition; Child; Child, Preschool; Children; Cross-Sectional Studies; Data Science; Dystrophy; Electronic Health Records; Electronic medical records; Eye; Eye (anatomy); Female; Hospitals; Humans; India - epidemiology; Infant; Infant, Newborn; Infants; Male; Medical records; Medicine; Medicine & Public Health; Ophthalmology; Original Paper; Patients; Pediatrics; Retina; Retinal degeneration; Retinal Dystrophies; Retinitis Pigmentosa; Retinopathy; Retrospective Studies; Teenagers; Visual Acuity
• ISSN: 1573-2630; 0165-5701; 1573-2630
• DOI: 10.1007/s10792-023-02682-6

Purpose To describe the spectrum and demographic distribution of non-oncological retinal diseases in children and adolescents presenting to a multi-tier ophthalmic hospital network in India. Methods This is a cross-sectional hospital-based retrospective study over nine years (March 2011–March 2020) from a pyramidal eye care network in India. The analysis included 477,954 new patients (0–21 years), collected from an International Classification of Diseases (ICD) coded electronic medical record (EMR) system. Patients with a clinical diagnosis of retinal disease (non-oncological) in at least one eye were included. Age-wise distribution of these diseases in children and adolescents was analysed. Results In the study, 8.44% (n = 40,341) of new patients were diagnosed with non-oncological retinal pathology in at least one eye. The age group-specific distribution of retinal diseases was 47.4%, 11. 8%, 5.9%, 5.9%, 6.4%, 7.6% in infants (