A call for autism‐led research exploring definitions of recovery in Autistic individuals with an eating disorder

Research Gap It is now established that definitions of recovery in eating disorders (EDs) should be informed by the lived/living experience of individuals and consider a broad range of physical, behavioral, and psychological factors. Autism is a common co‐occurring condition in EDs reflecting unique...

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Bibliographic Details
Published in:The International journal of eating disorders 2023-07, Vol.56 (7), p.1335-1340
Main Authors: Nimbley, Emy, Maloney, Ellen, Duffy, Fiona
Format: Article
Language:English
Subjects:
Autism
Eating disorders
neurodiversity
Participatory research
recovery
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Summary:Research Gap It is now established that definitions of recovery in eating disorders (EDs) should be informed by the lived/living experience of individuals and consider a broad range of physical, behavioral, and psychological factors. Autism is a common co‐occurring condition in EDs reflecting unique needs and experiences; however, very little research to date has explored definitions of recovery from EDs in Autistic populations. The current article will briefly review what we know about autism and EDs, before addressing how we can apply and extend what we know about broader ED recovery research to the unique needs of Autistic individuals with ED. Suggested Approach We propose that future studies are urgently required exploring definitions and conceptualizations of recovery in Autistic individuals with EDs, rooted in autism‐led, participatory research approaches and incorporating physical, behavioral, and psychological factors. Discussion Benefits and possible obstacles of implementing the proposed approach are discussed, before the authors outline specific suggestions for participatory designs and targets for future studies. Multidimensional and mixed method approaches to ED recovery will work toward integrating clinically measurable outcomes with lived/living experience perspectives. Public Significance EDs are common in Autistic individuals, however, very little is known about definitions of ED recovery in this population. Cross‐disciplinary, research‐driven definitions involving lived/living experience at all stages of the research process will generate meaningful and translational research.
ISSN:0276-3478
1098-108X
DOI:10.1002/eat.23953