Person-Centered Navigator Program for People with Parkinson’s Disease: A Pilot Study

There are limited Parkinson’s disease (PD)-specific navigator programs, although PD is chronic and requires life-long comprehensive care. As most patient navigation literature focuses on oncology and is based in the West, this study aimed to develop a person-centered navigator program for PD and eva...

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Bibliographic Details
Published in:Western journal of nursing research 2023-06, Vol.45 (6), p.499-510
Main Authors: Lee, JuHee, Kim, YonJi, Kim, Yielin, Suh, Yujin
Format: Article
Language:English
Subjects:
Continuity of care
Delivery of Health Care
Feasibility
Health care
Humans
Navigation
Oncology
Parkinson Disease - therapy
Parkinson's disease
Patient Navigation
Patient-centered care
Patients
Pilot Projects
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Summary:There are limited Parkinson’s disease (PD)-specific navigator programs, although PD is chronic and requires life-long comprehensive care. As most patient navigation literature focuses on oncology and is based in the West, this study aimed to develop a person-centered navigator program for PD and evaluate its preliminary outcomes and feasibility in the Korean context. The program was developed using the “analysis, design, development, implementation, and evaluation” model, and “professional navigation framework.” Initially, 28 participants were recruited to participate in an 8-week navigator program. The retention rate was 82%. Social function was significantly improved 12 weeks after baseline. Participants reported high satisfaction with the program, suggesting that it was well-accepted. This study systematically developed a navigator program based on PD-specific needs and the Korean context. Future models should focus on personal and participatory attributes. Navigator programs for people with PD represent appropriate and evolving healthcare interventions.
ISSN:0193-9459
1552-8456
DOI:10.1177/01939459231166479