Unfolding parental knowledge, attitudes, and beliefs toward palliative care for children with cancer

• Published in: Pediatric blood & cancer 2023-09, Vol.70 (9), p.e30484-n/a
• Main Authors: Rassam, Rima Saad, Huijer, Huda Abu‐Saad, Noureddine, Samar, Smith, Ellen M. Lavoie, Wolfe, Joanne, Fares, Souha, Abboud, Miguel R.
• Format: Article
• Language: English
• Subjects: Cancer; Children; Children & youth; Hematology; Oncology; Palliation; Palliative care; parents; Parents & parenting; Pediatrics; Statistical analysis
• ISSN: 1545-5009; 1545-5017
• DOI: 10.1002/pbc.30484

Background Parents’ views toward pediatric palliative care (PPC) remain underexplored, especially in low/middle‐income countries where care relies heavily on families. A better understanding of parents’ perspectives would inform strategies to support PPC integration into the care of children with cancer. This multicenter study aimed to examine knowledge, attitudes, and beliefs toward PPC among parents of children with cancer in Lebanon to uncover areas for improvement and determine associated factors. Methods Using a quantitative cross‐sectional descriptive design, 105 primary caregivers (RR = 95.4%) were recruited during the child's visit to one of three pediatric oncology centers in Lebanon. Data were collected through structured interviews using questionnaire items newly developed or taken from validated tools. Data were analyzed using descriptive statistics, correlational analysis, and multiple linear regression. Results Only 18/105 participants (17.1%) had heard about PPC and 2% had accurate information about it. When given a brief description, more than 90% endorsed PPC and recommended its integration upon the child's diagnosis. Respectively, “Religious and spiritual engagement” and “Overwhelming negative emotions” were the most cited facilitators and barriers to integrating PPC. Knowledge, attitudes, and beliefs were significantly associated with several demographic and clinical factors such as education level, number of persons living with the child, child's symptom count, and pain score. Conclusion This research is among the very first studies conducted to examine parents’ perspectives toward PPC for children with cancer in Lebanon. Study findings inform future directions to promote PPC in limited‐resource settings through expanded research, policy, education, and practice initiatives.