Loading…
Bridge-building between communities: Imagining the future of biomedical autism research
A paradigm shift in research culture is required to ease perceived tensions between autistic people and the biomedical research community. As a group of autistic and non-autistic scientists and stakeholders, we contend that through participatory research, we can reject a deficit-based conceptualizat...
Saved in:
Published in: | Cell 2023-08, Vol.186 (18), p.3747-3752 |
---|---|
Main Authors: | , , , , , , , , , , , , , , , , , , , , , |
Format: | Article |
Language: | English |
Subjects: | |
Citations: | Items that this one cites Items that cite this one |
Online Access: | Get full text |
Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
cited_by | cdi_FETCH-LOGICAL-c410t-ab1fbefd8d01780617621e40585f2e5a600b750fbdaa331c734b659fadf8433a3 |
---|---|
cites | cdi_FETCH-LOGICAL-c410t-ab1fbefd8d01780617621e40585f2e5a600b750fbdaa331c734b659fadf8433a3 |
container_end_page | 3752 |
container_issue | 18 |
container_start_page | 3747 |
container_title | Cell |
container_volume | 186 |
creator | Heraty, Síofra Lautarescu, Alexandra Belton, David Boyle, Alison Cirrincione, Pietro Doherty, Mary Douglas, Sarah Plas, Jan Roderik Derk Van Den Bosch, Katrien Violland, Pierre Tercon, Jerneja Ruigrok, Amber Murphy, Declan G.M. Bourgeron, Thomas Chatham, Christopher Loth, Eva Oakley, Bethany McAlonan, Grainne M. Charman, Tony Puts, Nicolaas Gallagher, Louise Jones, Emily J.H. |
description | A paradigm shift in research culture is required to ease perceived tensions between autistic people and the biomedical research community. As a group of autistic and non-autistic scientists and stakeholders, we contend that through participatory research, we can reject a deficit-based conceptualization of autism while building a shared vision for a neurodiversity-affirmative biomedical research paradigm.
A paradigm shift in research culture is required to ease perceived tensions between autistic people and the biomedical research community. As a group of autistic and non-autistic scientists and stakeholders, we contend that through participatory research, we can reject a deficit-based conceptualization of autism while building a shared vision for a neurodiversity-affirmative biomedical research paradigm. |
doi_str_mv | 10.1016/j.cell.2023.08.004 |
format | article |
fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_2860407766</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><els_id>S0092867423008589</els_id><sourcerecordid>2860407766</sourcerecordid><originalsourceid>FETCH-LOGICAL-c410t-ab1fbefd8d01780617621e40585f2e5a600b750fbdaa331c734b659fadf8433a3</originalsourceid><addsrcrecordid>eNqFkLlOxDAQQC0EEsvxA1QpaRLGdnwsogHEJSHRgCgtxxnvepVjsRMQf0-ipYZqinlvpHmEnFEoKFB5sSkcNk3BgPECdAFQ7pEFhaXKS6rYPlkALFmupSoPyVFKGwDQQogFeb-JoV5hXo2hqUO3yiocvhC7zPVtO3ZhCJgus6fWrkI3r4c1Zn4cxohZ77Mq9C3Wwdkms-MQUptFTGijW5-QA2-bhKe_85i83d-93j7mzy8PT7fXz7krKQy5raiv0Ne6Bqo0SKoko1iC0MIzFFYCVEqAr2prOadO8bKSYult7XXJueXH5Hx3dxv7jxHTYNqQ5ha2w35MhlPBlRaM639RpiWUoJSUE8p2qIt9ShG92cbQ2vhtKJg5uNmY2TRzcAPaTMEn6Won4fTvZ8BokgvYuSlQRDeYug9_6T_V7onb</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2860407766</pqid></control><display><type>article</type><title>Bridge-building between communities: Imagining the future of biomedical autism research</title><source>ScienceDirect (Online service)</source><creator>Heraty, Síofra ; Lautarescu, Alexandra ; Belton, David ; Boyle, Alison ; Cirrincione, Pietro ; Doherty, Mary ; Douglas, Sarah ; Plas, Jan Roderik Derk ; Van Den Bosch, Katrien ; Violland, Pierre ; Tercon, Jerneja ; Ruigrok, Amber ; Murphy, Declan G.M. ; Bourgeron, Thomas ; Chatham, Christopher ; Loth, Eva ; Oakley, Bethany ; McAlonan, Grainne M. ; Charman, Tony ; Puts, Nicolaas ; Gallagher, Louise ; Jones, Emily J.H.</creator><creatorcontrib>Heraty, Síofra ; Lautarescu, Alexandra ; Belton, David ; Boyle, Alison ; Cirrincione, Pietro ; Doherty, Mary ; Douglas, Sarah ; Plas, Jan Roderik Derk ; Van Den Bosch, Katrien ; Violland, Pierre ; Tercon, Jerneja ; Ruigrok, Amber ; Murphy, Declan G.M. ; Bourgeron, Thomas ; Chatham, Christopher ; Loth, Eva ; Oakley, Bethany ; McAlonan, Grainne M. ; Charman, Tony ; Puts, Nicolaas ; Gallagher, Louise ; Jones, Emily J.H.</creatorcontrib><description>A paradigm shift in research culture is required to ease perceived tensions between autistic people and the biomedical research community. As a group of autistic and non-autistic scientists and stakeholders, we contend that through participatory research, we can reject a deficit-based conceptualization of autism while building a shared vision for a neurodiversity-affirmative biomedical research paradigm.
A paradigm shift in research culture is required to ease perceived tensions between autistic people and the biomedical research community. As a group of autistic and non-autistic scientists and stakeholders, we contend that through participatory research, we can reject a deficit-based conceptualization of autism while building a shared vision for a neurodiversity-affirmative biomedical research paradigm.</description><identifier>ISSN: 0092-8674</identifier><identifier>EISSN: 1097-4172</identifier><identifier>DOI: 10.1016/j.cell.2023.08.004</identifier><language>eng</language><publisher>Elsevier Inc</publisher><subject>autism ; biomedical research ; cooperative research ; stakeholders</subject><ispartof>Cell, 2023-08, Vol.186 (18), p.3747-3752</ispartof><rights>2023 Elsevier Inc.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c410t-ab1fbefd8d01780617621e40585f2e5a600b750fbdaa331c734b659fadf8433a3</citedby><cites>FETCH-LOGICAL-c410t-ab1fbefd8d01780617621e40585f2e5a600b750fbdaa331c734b659fadf8433a3</cites><orcidid>0000-0001-8023-367X</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://www.sciencedirect.com/science/article/pii/S0092867423008589$$EHTML$$P50$$Gelsevier$$H</linktohtml><link.rule.ids>314,776,780,3535,27903,27904,45759</link.rule.ids></links><search><creatorcontrib>Heraty, Síofra</creatorcontrib><creatorcontrib>Lautarescu, Alexandra</creatorcontrib><creatorcontrib>Belton, David</creatorcontrib><creatorcontrib>Boyle, Alison</creatorcontrib><creatorcontrib>Cirrincione, Pietro</creatorcontrib><creatorcontrib>Doherty, Mary</creatorcontrib><creatorcontrib>Douglas, Sarah</creatorcontrib><creatorcontrib>Plas, Jan Roderik Derk</creatorcontrib><creatorcontrib>Van Den Bosch, Katrien</creatorcontrib><creatorcontrib>Violland, Pierre</creatorcontrib><creatorcontrib>Tercon, Jerneja</creatorcontrib><creatorcontrib>Ruigrok, Amber</creatorcontrib><creatorcontrib>Murphy, Declan G.M.</creatorcontrib><creatorcontrib>Bourgeron, Thomas</creatorcontrib><creatorcontrib>Chatham, Christopher</creatorcontrib><creatorcontrib>Loth, Eva</creatorcontrib><creatorcontrib>Oakley, Bethany</creatorcontrib><creatorcontrib>McAlonan, Grainne M.</creatorcontrib><creatorcontrib>Charman, Tony</creatorcontrib><creatorcontrib>Puts, Nicolaas</creatorcontrib><creatorcontrib>Gallagher, Louise</creatorcontrib><creatorcontrib>Jones, Emily J.H.</creatorcontrib><title>Bridge-building between communities: Imagining the future of biomedical autism research</title><title>Cell</title><description>A paradigm shift in research culture is required to ease perceived tensions between autistic people and the biomedical research community. As a group of autistic and non-autistic scientists and stakeholders, we contend that through participatory research, we can reject a deficit-based conceptualization of autism while building a shared vision for a neurodiversity-affirmative biomedical research paradigm.
A paradigm shift in research culture is required to ease perceived tensions between autistic people and the biomedical research community. As a group of autistic and non-autistic scientists and stakeholders, we contend that through participatory research, we can reject a deficit-based conceptualization of autism while building a shared vision for a neurodiversity-affirmative biomedical research paradigm.</description><subject>autism</subject><subject>biomedical research</subject><subject>cooperative research</subject><subject>stakeholders</subject><issn>0092-8674</issn><issn>1097-4172</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2023</creationdate><recordtype>article</recordtype><recordid>eNqFkLlOxDAQQC0EEsvxA1QpaRLGdnwsogHEJSHRgCgtxxnvepVjsRMQf0-ipYZqinlvpHmEnFEoKFB5sSkcNk3BgPECdAFQ7pEFhaXKS6rYPlkALFmupSoPyVFKGwDQQogFeb-JoV5hXo2hqUO3yiocvhC7zPVtO3ZhCJgus6fWrkI3r4c1Zn4cxohZ77Mq9C3Wwdkms-MQUptFTGijW5-QA2-bhKe_85i83d-93j7mzy8PT7fXz7krKQy5raiv0Ne6Bqo0SKoko1iC0MIzFFYCVEqAr2prOadO8bKSYult7XXJueXH5Hx3dxv7jxHTYNqQ5ha2w35MhlPBlRaM639RpiWUoJSUE8p2qIt9ShG92cbQ2vhtKJg5uNmY2TRzcAPaTMEn6Won4fTvZ8BokgvYuSlQRDeYug9_6T_V7onb</recordid><startdate>20230831</startdate><enddate>20230831</enddate><creator>Heraty, Síofra</creator><creator>Lautarescu, Alexandra</creator><creator>Belton, David</creator><creator>Boyle, Alison</creator><creator>Cirrincione, Pietro</creator><creator>Doherty, Mary</creator><creator>Douglas, Sarah</creator><creator>Plas, Jan Roderik Derk</creator><creator>Van Den Bosch, Katrien</creator><creator>Violland, Pierre</creator><creator>Tercon, Jerneja</creator><creator>Ruigrok, Amber</creator><creator>Murphy, Declan G.M.</creator><creator>Bourgeron, Thomas</creator><creator>Chatham, Christopher</creator><creator>Loth, Eva</creator><creator>Oakley, Bethany</creator><creator>McAlonan, Grainne M.</creator><creator>Charman, Tony</creator><creator>Puts, Nicolaas</creator><creator>Gallagher, Louise</creator><creator>Jones, Emily J.H.</creator><general>Elsevier Inc</general><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>7S9</scope><scope>L.6</scope><orcidid>https://orcid.org/0000-0001-8023-367X</orcidid></search><sort><creationdate>20230831</creationdate><title>Bridge-building between communities: Imagining the future of biomedical autism research</title><author>Heraty, Síofra ; Lautarescu, Alexandra ; Belton, David ; Boyle, Alison ; Cirrincione, Pietro ; Doherty, Mary ; Douglas, Sarah ; Plas, Jan Roderik Derk ; Van Den Bosch, Katrien ; Violland, Pierre ; Tercon, Jerneja ; Ruigrok, Amber ; Murphy, Declan G.M. ; Bourgeron, Thomas ; Chatham, Christopher ; Loth, Eva ; Oakley, Bethany ; McAlonan, Grainne M. ; Charman, Tony ; Puts, Nicolaas ; Gallagher, Louise ; Jones, Emily J.H.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c410t-ab1fbefd8d01780617621e40585f2e5a600b750fbdaa331c734b659fadf8433a3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2023</creationdate><topic>autism</topic><topic>biomedical research</topic><topic>cooperative research</topic><topic>stakeholders</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Heraty, Síofra</creatorcontrib><creatorcontrib>Lautarescu, Alexandra</creatorcontrib><creatorcontrib>Belton, David</creatorcontrib><creatorcontrib>Boyle, Alison</creatorcontrib><creatorcontrib>Cirrincione, Pietro</creatorcontrib><creatorcontrib>Doherty, Mary</creatorcontrib><creatorcontrib>Douglas, Sarah</creatorcontrib><creatorcontrib>Plas, Jan Roderik Derk</creatorcontrib><creatorcontrib>Van Den Bosch, Katrien</creatorcontrib><creatorcontrib>Violland, Pierre</creatorcontrib><creatorcontrib>Tercon, Jerneja</creatorcontrib><creatorcontrib>Ruigrok, Amber</creatorcontrib><creatorcontrib>Murphy, Declan G.M.</creatorcontrib><creatorcontrib>Bourgeron, Thomas</creatorcontrib><creatorcontrib>Chatham, Christopher</creatorcontrib><creatorcontrib>Loth, Eva</creatorcontrib><creatorcontrib>Oakley, Bethany</creatorcontrib><creatorcontrib>McAlonan, Grainne M.</creatorcontrib><creatorcontrib>Charman, Tony</creatorcontrib><creatorcontrib>Puts, Nicolaas</creatorcontrib><creatorcontrib>Gallagher, Louise</creatorcontrib><creatorcontrib>Jones, Emily J.H.</creatorcontrib><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>AGRICOLA</collection><collection>AGRICOLA - Academic</collection><jtitle>Cell</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Heraty, Síofra</au><au>Lautarescu, Alexandra</au><au>Belton, David</au><au>Boyle, Alison</au><au>Cirrincione, Pietro</au><au>Doherty, Mary</au><au>Douglas, Sarah</au><au>Plas, Jan Roderik Derk</au><au>Van Den Bosch, Katrien</au><au>Violland, Pierre</au><au>Tercon, Jerneja</au><au>Ruigrok, Amber</au><au>Murphy, Declan G.M.</au><au>Bourgeron, Thomas</au><au>Chatham, Christopher</au><au>Loth, Eva</au><au>Oakley, Bethany</au><au>McAlonan, Grainne M.</au><au>Charman, Tony</au><au>Puts, Nicolaas</au><au>Gallagher, Louise</au><au>Jones, Emily J.H.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Bridge-building between communities: Imagining the future of biomedical autism research</atitle><jtitle>Cell</jtitle><date>2023-08-31</date><risdate>2023</risdate><volume>186</volume><issue>18</issue><spage>3747</spage><epage>3752</epage><pages>3747-3752</pages><issn>0092-8674</issn><eissn>1097-4172</eissn><abstract>A paradigm shift in research culture is required to ease perceived tensions between autistic people and the biomedical research community. As a group of autistic and non-autistic scientists and stakeholders, we contend that through participatory research, we can reject a deficit-based conceptualization of autism while building a shared vision for a neurodiversity-affirmative biomedical research paradigm.
A paradigm shift in research culture is required to ease perceived tensions between autistic people and the biomedical research community. As a group of autistic and non-autistic scientists and stakeholders, we contend that through participatory research, we can reject a deficit-based conceptualization of autism while building a shared vision for a neurodiversity-affirmative biomedical research paradigm.</abstract><pub>Elsevier Inc</pub><doi>10.1016/j.cell.2023.08.004</doi><tpages>6</tpages><orcidid>https://orcid.org/0000-0001-8023-367X</orcidid><oa>free_for_read</oa></addata></record> |
fulltext | fulltext |
identifier | ISSN: 0092-8674 |
ispartof | Cell, 2023-08, Vol.186 (18), p.3747-3752 |
issn | 0092-8674 1097-4172 |
language | eng |
recordid | cdi_proquest_miscellaneous_2860407766 |
source | ScienceDirect (Online service) |
subjects | autism biomedical research cooperative research stakeholders |
title | Bridge-building between communities: Imagining the future of biomedical autism research |
url | http://sfxeu10.hosted.exlibrisgroup.com/loughborough?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-01-24T04%3A34%3A58IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_cross&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Bridge-building%20between%20communities:%20Imagining%20the%20future%20of%20biomedical%20autism%20research&rft.jtitle=Cell&rft.au=Heraty,%20S%C3%ADofra&rft.date=2023-08-31&rft.volume=186&rft.issue=18&rft.spage=3747&rft.epage=3752&rft.pages=3747-3752&rft.issn=0092-8674&rft.eissn=1097-4172&rft_id=info:doi/10.1016/j.cell.2023.08.004&rft_dat=%3Cproquest_cross%3E2860407766%3C/proquest_cross%3E%3Cgrp_id%3Ecdi_FETCH-LOGICAL-c410t-ab1fbefd8d01780617621e40585f2e5a600b750fbdaa331c734b659fadf8433a3%3C/grp_id%3E%3Coa%3E%3C/oa%3E%3Curl%3E%3C/url%3E&rft_id=info:oai/&rft_pqid=2860407766&rft_id=info:pmid/&rfr_iscdi=true |