The WebRA study: Opportunities and challenges in digital patient education from the perspective of patients with rheumatoid arthritis: A qualitative study

• Published in: Patient education and counseling 2023-11, Vol.116, p.107969-107969, Article 107969
• Main Authors: Knudsen, Line Raunsbæk, Lomborg, Kirsten, Hauge, Ellen-Margrethe, Zangi, Heidi A., de Thurah, Annette
• Format: Article
• Language: English
• ISSN: 0738-3991; 1873-5134
• DOI: 10.1016/j.pec.2023.107969

To explore patients' perceptions of digital patient education (PE), and how this contributes to self-management of rheumatoid arthritis (RA). Individual interviews based on 'interpretive description' methodology. The patients were purposively selected from a randomized controlled trial that investigated the effects of digital PE. The analysis included a descriptive section, followed by the interpretation and extraction of the main messages. Overall, participants had positive perceptions of the e-learning program. Advantages were flexibility, the possibility for repetition, entertainment, availability, and learning in familiar surroundings. Disadvantages were unmet relational support needs due to missing dialogue with health care providers (HCPs). For the majority, a need for insight into the condition led to an active approach to using e-learning. The e-learning program facilitated knowledge acquisition about RA, but relational support from HCPs and a positive attitude toward living with RA were also important for achieving self-management. Digital PE is useful for self-management support in RA, however different forms and combinations of PE must be offered in the future to accommodate various needs throughout the disease course. These results may inform future development and implementation of digital PE that adequately takes individual preferences for self-management support into account. •Opportunities of e-learning relates to information and knowledge acquisition.•Challenges of e-learning arises in meeting relational and emotional support needs.•Self-management is formed by knowledge, experiences and healthcare support.•Combined digital and face-to-face patient education may accommodate various needs.