Advancing Pediatric Sexual Orientation and Gender Identity Data Collection

According to the Human Rights Campaign, 77 anti-SGM bills had been signed into law as of June 8,2023, more than any previous year and double the number passed in the entire preceding year. Guidelines from the American Academy of Pediatrics have directed all pediatricians to create safe and inclusive...

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Bibliographic Details
Published in:American journal of public health (1971) 2024-01, Vol.114 (1), p.17-20
Main Authors: Liu, Michael, Grasso, Chris, Kim, Hyun-Hee, Mayer, Kenneth H, Keuroghlian, Alex S
Format: Article
Language:English
Subjects:
Bills
Data collection
Educational programs
Electronic health records
Gender aspects
Gender identity
Guidelines
Health care
Health disparities
Hispanic Americans
Human rights
Medical personnel
Mental health
Mental health services
Nomenclature
Non-binary gender
Patients
Pediatricians
Pediatrics
Public health
Sexual behavior
Sexual orientation
Sexuality
Standardization
Suicides & suicide attempts
Teenagers
Terminology
Transgender persons
Wealth
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Summary:According to the Human Rights Campaign, 77 anti-SGM bills had been signed into law as of June 8,2023, more than any previous year and double the number passed in the entire preceding year. Guidelines from the American Academy of Pediatrics have directed all pediatricians to create safe and inclusive environments for SGM patients.8 Fundamentally, collecting pediatric SOGI data ensures continued visibility of SGM youths and stands in opposition to ongoing legislative efforts to erase this population. [...]a wealth of evidence has demonstrated that collection of SOGI data is critical for delivering responsive, affirming, and patient-centered care for SGM people.3 Knowledge of pediatric SOGI facilitates delivery of appropriate anticipatory counseling and referral to genderaffirming care and mental health supports. [...]all EHRs used in pediatric care settings should have the capacity to collect SOGI data with standardized categories and terminology from current guidelines.11 This should also be paired with updating and integrating international code sets to capture patient SOGI data, such as the Systematized Nomenclature of Medicine and Logical Observation Identifiers Names and Codes.14 Standardization across EHRs should continue to align with DHHS interoperability standards and allow for performance benchmarking related to data collection efforts. [...]training programs related to SOGI data collection should be delivered to all members ofthe health care workforce in pediatric care settings.
ISSN:0090-0036
1541-0048
1541-0048
DOI:10.2105/AJPH.2023.307448